Yes, he shouldn't have blown you off. NOT good. I don't think anyone, even the specialists, understand the immense pain and discomfort we all have to live with every day. If he had chronic, debilitating headaches, he certainly wouldn't accept being blown off by his doctor would he! NOOOOOOOO. I hope your next appointment goes better.
I have found out through trial and error that being able to talk "doctor talk" really gets me a long way. The more I know about my disease, the more I information I can get out of the doctor and I actually get more respect for some reason. It took me about 5 years to get to the place where I could talk like they do! My most recent trip to the ER in July was an eye opener for my dad.... I was behind the curtain with the ER doctor and were talking "shop". My dad asked my mom who else was in the room with me and this doctor. My mom laughed and said it was me who was talking. My dad was floored! He had never heard me talk with a doctor before, and he couldn't believe I knew so much! I thought that was kind of neat.
So, that's just one piece of advice you can take, or not! Knowledge is power with this illness, and its host of additional disorders.
You nailed it. You are the expert on you. You know your body better than anyone. You know when something is wrong and when it's okay. It's amazing how in touch we become with ourselves isn't it! So keep on doing what you're doing. If you can research some tests in regards to headaches, etc, that might help you get somewhere faster. Just a thought!
Blessings to you too Dakota. Keep that Phillipians verse close! LOL!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus