Razzle, thanks so much for responding. And that's ok about
not getting back to me sooner, I am a couple of days before I get back here anyway. You are right about
there being no pain like RSD pain. I wasn't lucky enough to have mine stay in one spot, but so far it has only spread from me knee down to my foot. I hope it stops there, it has gone far enough if you want my opinion about
it,lol. I went a long time, a couple of years without meds for RSD. I fought the pain, went to therapy three times a week , two hours each time for 16 months, working closely with the physical therapists to learn to walk again, I walk with a huge limp but I walk and by myself. No more walker or cane, crutches or chair. I am proud of myself, I have come a long way from where I was 5 years ago. But the pain continues and I continue to deal with it. I will not give into it, I fight it every day and will till the day I die. I can't let it beat me, no matter how much it wants to. It's gonna lose,lol. I did the nerve blocks, didn't get much relief other then gaining about
14% range of movement in my leg, which is huge to me. I have the muscle atrophy as well and have a hard time wearing socks and shoes on my foot. But I can't handle the cold, that makes it even worse, so socks and shoes are the lessor of the two evils. I sit and soak in my hot tub, which is a Godsend. My bathtub isn't high enough to get the water over my knee, so that was out. I take Zytram for the pain and extra strength tylenol for breakthrough pain. It will never go away, I know that and have accepted it. I don't like it but this is my life and I am going to live it the best I can. No RSD is going to stop me.
I am so happy for you that you were able to beat it!!! You will have to continue to work hard to stop it from coming back, its a pesky disease,lol.Keep it up and thanks again for responding to me about
If you ever feel like chatting about
it, I would like to hear more about
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.