busy next few weeks

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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 10/17/2007 6:38 PM (GMT -6)   
I just wanted to let everyone know that I might not be online as much as usual the next week or two.  I have some different things going on with my kids at school and we have to go out of town for my son's appointment with the new pediatric rheumy.
I've actually been feeling pretty good these last few days and have really been enjoying doing some little projects around home and I have just enjoyed living life again.  Of course I still have pain and fatigue but it is much more manageable now than it had been.  I still don't think I'll try to taper my prednisone until after my son's appointment.
I'll still come online as much as I can, but I just wanted to let everyone know if I'm not around a lot it's not because I'm flaring (or at least I hope I won't be).
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 10/17/2007 6:46 PM (GMT -6)   
Hi Hippie!!

Thanks so much for the heads up. We would have worried about you!!! SO GLAD you have been feeling better. *phewwww!* you were in such sad shape for so long!! Pace . . . pace . . . pace . . . but enjoy your break from skull . . . hope it lasts and lasts for you!! Don't worry about the forum the other mods and I will watch over things . . . shield up!! to block all spammers!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 10/17/2007 10:07 PM (GMT -6)   
Keep keeping it easy and keep feeling better!


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/17/2007 11:19 PM (GMT -6)   

Hi Hippi, thanks for letting us know. I'm so glad you are feeling better. I hope this cooler weather is going to help you out some. I hope all goes well for your son at his upcoming appt: try to rest when ever you can

love ya


God Bless
Primary Biliary Cirrosis,  COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

Veteran Member

Date Joined Jan 2007
Total Posts : 610
   Posted 10/18/2007 7:07 AM (GMT -6)   
Glad to hear that you are feeling much better. Remember don't work yourself out and take care while doing all these little projects.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 10/18/2007 10:39 AM (GMT -6)   

I'm glad you're going to take some time for yourself and your kids. Sometimes it's good to step back and shake things up bit. Enjoy your projects! Don't you wish you could just forget about lupus for one whole week! I hope you continue to feel ok and that Josh's appointment goes well. I know we'll all be anxious to know how you like the new pediatric rheumy and what he or she has to say. I wish you lots of luck on the 23rd.

Take care,

Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

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