Welcome to the forum! So sorry you are having SO much trouble.
The hospital will help you get extreme symptoms under control . . . but its not a likely place for a diagnoses. You say you've been dealing with this for 9 years and you can't get a dx . . . how often do you see a doc and how many docs??? I know I experienced symptoms for years and years and I went to the family doctor and told him I had fatigue. I didn't know all the other stuff was significant . . . so three different doctors dx'd me with depression and missed the big picture. But when I armed myself with proper notes and symptoms and marched back in for another try (about
15 years after the first try) I started to get somewhere. By then, I had extreme sun sensitivity and malar rash to go along with my other symptoms.
In case you haven't tried it . . . there is an outline for a cheat sheet to take to the doctor with you in the last post of "Lupus Resources". There is a clickable link in my signature. LOTS of good information in that topic. The members here each gave their best tips to new members and we combined them in one post in that topic. There are also some other clickable links in my signature that you might find useful.
You've definitely got something going on that needs medical attention and it sounds, from your descript
ion, that it might be 2 or more overlapping diseases. You say you have anemia . . . is your doctor treating that?? and the swollen, infected glands??? urine infections???? Those are measurable problems . . . is he not treating each of them??? Has he seen the mouth ulcers??? I hope you are keeping a symptom diary. Just use a small calender and jot things down. If you've brought these issues to your doc and he hasn't treated you . . . find another doctor. If he hasn't seen the mouth ulcers, take pictures so you can show him.
We can't help you dx your problems, but you can systematically prepare for you doctor visits and help him to get to the bottom of things. I hope the others have some good ideas for you too.
Knowledge is power so you will be doing yourself a big favor to learn all you can about
Lupus so you can either include it as a possibility or rule it out. You do have some of the criterea for a lupus dx. It takes four of 11 criterea . . . there is a link in my signature to see all 11.
Glad you found us . . . keep learning and ask any questions you might have.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator