I'm so sorry you are having such a bad time with your health. It definitely sounds like the kinds of things that happen to me, but I have more than one autoimmune disease. If you can get to a doctor, you should ask them to check your thyroid antibodies for hashimotos, because much of what you describe sounds like possible hashimotos hypothyroidism, which runs with lupus, alot of us here have it, it is autoimmune thyroid disease. They need to test your TPOs (thyroid peroxidase, even if you have normal thyroid function tests (TSH T3). Many people are euthyroid (normal thyroid function tests) and have severe autoimmune thyroid damage and sickness. A family doctor can do this, but you need to tell them to test the anti-thyroid antibodies (TPOs) specifically usually. If they are high, you need to be treated regardless of what your thyroid function tests say. It can cause severe neurological damage. I also have a drooping right eye and some vision oddities. A schirmer test, which checks for the moisture in your eyes and is a test for sjogrens syndrome (another AI disease that runs with lupus very frequently and has the same treatment), would be an easy thing for any doctor to test, just make sure you aren't crying and your eyes are the normal dryness. Severe dry eyes and inflammation of the lacrimal glands can cause some real visual oddities as can hashimotos, which can even cause hallucinations, moving around black spots, periphera vision problems, even brain damage. These tests can help support a lupus diagnosis. Then hopefully you will get into a rheumie to get the regular blood tests. Remember that regular old osteoarthritis and degenerative disk disease or hot and swollen joints can get you a referral to a rheumie, so even if initial blood work doesn't seem to warrant a visit to the rheumie, you may have other problems that can get you in to see one. See sometimes the bloodwork doesn't come out positive, it can be negative then turn positive then turn negative again, and many regular doctors don't understand this. I knew I had AI disease, but I had to use my osteoarthritis to get in to see a rheumatologist and it changed my life, and my health and everything. I' so glad I didn't give up.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments