First off welcome to our forum. I've had lupus for 19 years and had a child during this time. My pregnancy was fairly uncomplicated. I was admitted only once for some difficulties with my kidneys. I had a healthy 6 pound baby girl.
That being said, my daughter was born with Autism, she's a high functioning one and I spent the first 7 years of her life devoted to getting her connected to the world. She's got a positive ANA of 1:640 and gets rashes and muscle pain. Did my lupus do this to hear I don't know. The peds rheumy said that mothers who have AI diseases often pass on a positive ANA to our children. Would I change things, "NO" I love my daughter more than life. I have to admit that the stress and energy it took to raise her made my lupus flare. There are about
6 other members here who have kids that have Autism, it would be interesting if a research study were to be done on the connection of lupus and autism in our kids.
Would I recommend you get a hysterectomy just to avoid having a child, I can't say yes or no to that question. Deciding to have a child is a huge responsibility and you need to consider being a Mom is a life time job, and the stress and good things will affect your lupus. I'd discuss this with your hubby and I hope that you'll be able to make the best choice for you both. I'm more than happy to answer any questions you may have about
my pregnancy or how I think my lupus affected my daughter.
I've had a hysterectomy and it was the best thing I ever did, but that's due to I was having severe "female" issues. I have to say now that my daughter is 14 I'm at my sickest. My daughter has no memory of me being well. Since 2005 I've become seriously ill. Not only is my lupus bad, but I was on cytoxan to treat my lupus and I developed a rare blood cancer. So now I've got lupus and MDS feeding off of each other. I'm going to need a bone marrow transplant if I hope to live past the age of 48 or so. My oncologist is saying I've got a max of 5 more years to live or less. It's all in the hands of God, since I see myself going down hill pretty fast, I think I'll be lucky if I live the next 2 1/2 to 3 years. I wouldn't change having my daughter Nikita as far as her disability. However, I've deprived my daughter of having a mother that will grow old and be able to enjoy her later in life. I've given my daughter only memories of me being sick and in bed. Those things I regret but I wouldn't change the fact I chose to have her. I hope this helps you some.
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.
Post Edited (Barbara Lee) : 10/19/2007 5:09:15 PM (GMT-6)