Making you wait for a transplant makes no sense whatsoever. Do other doctors feel you should wait too? I'm really sorry that you have to go through this. It's bad enough to have Lupus but then to add everything else to it has to be hard for you. You will be in our prayers and remember that we are working to help find you a match. My husband sent his cheek swab in a month ago and is now on the Bone Marrow Registry. Since I was unable to donate we also sponsored two people to be tested.
God bless you!
To everyone else ... Unfortunately those of us with Lupus, Fibromyalgia or any other type of autoimmune disease would be exempt from being able to donate bone marrow. When there is a blood drive you can donate bone marrow but believe it or not they charge you! All the Blood Banks care about
is blood, they don't care that there are people out there in desperate need of bone marrow. There might be a blood bank in your area that collects platelets. I'll post more information about
that for anyone who is interested.
There are other ways you can help if you are personally unable to donate. You can enlist the help of others who do not have an autoimmune disease or you can sponsor a test. A cheek swab costs $55.00. Talk to your friends and if they are willing to be tested, you can always pay for the $55.00 test fee.
If there is anyone who would like more information on bone marrow donors please let me know and I would be more than happy to send you information on the procedures of donating bone marrow and how you can help people like Barbara.
Did you know that there are close to 300 million people in the U.S. and only 1% of the entire U.S. population has been tested and is in the National Marrow Donor Program?
It doesn't matter where you live, if you are a match to someone in the world needing a bone marrow transplant the insurance company of the person in need would pay all expenses in collecting the bone marrow. There would be NO costs to the person who donates.
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Plaquenil, Clinoril, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Toradol, Percoset, Loratab
There is no psychiatrist in the world like a puppy licking your face.