Of course I remember you. While I'm so glad you have lupus, I hate to hear about your lyme diagnosis. What will your treatment be? How have you been doing? As you can tell, we have lots of new folks here, and some of us old timers.
I've been feeling a little better and am trying an elimination diet and am working with a naturopath who's teaching me, among other things, to eliminate processed and packaged food from my diet. And I'm very involved in my knitting and have been asked to write up and sell a pattern for some bags I designed. I haven't been as active here as I have been but this forum will always be a part of my life. I'm so glad you came back to say hi. We've missed you. I'm sure others here will be happy to catch up with you.
Let us know how you've been feeling. Good luck with the lyme treatment!
Hi Pat.....changing your diet is a great move. I did that 13 yrs ago when I first got sick. It made a huge difference.
My Lyme dr thinks lyme symptoms are less severe b/c I change my diet and worked out a lot.
Keep that up, you'll be so glad you did.
My Rheum is not ruling out lupus until I'm treated and "cured" from lyme. But it would be odd to have both.
I'm also going to see an ND in 2 weeks. I will treat the lyme with antibiotics and natural meds.
The treatment is brutal. Months of zithromax, Doxy (Vibramycin) and Flagyl. I was hoping to treat it 100% natural, but owe to myself to try some meds also.
The Lyme dr I saw was in the US (I'm in Canada and there are no Lyme literate dr's here) so she gave me all the scripts and info and I have to get a dr here to treat me. That is the hard part b/c no dr really want to prescribe what another dr would give
But my rheum is on board.
Actually, you guys will find this interesting. He is going to ask his other Lupus patients if they want to get checked for lyme. All the info I sent him and all the info I told him about says he is now questioning his diagnosis of other patients.
May prove to be false, but worth a shot I guess.
I've been doing ok. Ups and downs. Having a rough time with fatigue and depression. You know how the story goes.
Thanks for the luck.....I'll keep you guys posted.