Jen, I remember you well and am glad to hear from you again. I think your case is a perfect example of making sure that you listen to your gut instinct about
what is going on with you and making sure you continue to get things checked if you don't think the docs have it right. Both lyme and lupus mimic so many other diseases that they are pretty tricky to diagnose.
I really hope your treatment for lyme works well for you and that you get some real relief. What kind of testing did you get to show you had lyme? I'm asking because we may get my son tested and I know that some of the tests are more accurate than others.
I've had the usual ups and downs with lupus - some days I feel pretty good and some days are pretty rough. I've had a super busy and stressful week so I'm not feeling great now, but I think if I rest up for a few days I'll start feeling better again.
Let us know how the lyme treatment works for you. Take care and thanks for the update.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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