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Ann Ireland
Veteran Member

Date Joined Apr 2006
Total Posts : 511
   Posted 10/28/2007 3:21 PM (GMT -6)   
Went to a design mag launch with twin sister while in London. It was held in a studio with spot lights on the rim of the ceiling. I was in the wheelchair. These alarmed me enormously and everytime my eye/s caught one I moved the wheelchair pretty quick.
The launch podium was beside the speech reader as I am deaf so I moved near the podium to read the text but also there gathered all the pro photographers. The flashing lights distressed me so much I moved behind them but then I really went 'AWOL' in my brain. I had to get away, I thought I'd either scream or fit and I broke into a sweat. I went to the cloakroom to find my darkened specs but couldnt find them in the rucksack and I became tearful and frantic. I panicked. Lights flashing in the distance from the photographers and spot lights were all making it worse. I broke into a sweat and shut my eyes until the attendants had found the specs but even then I immediately left the hall. I went outside into the dark but there were lights in the flower pots there, quite strong and I just sat in wheelchair and wept.
I developed a major headache and twin found me so distressed we left.
Going to find a taxi I held head down and even the motion of the wheelchair got to me.
I had a blinder of a headache for two days and also massive buzzing in my head, it has eased now but I worry all the time.
Have any of you had this sort of reaction to lights and the buzzing, that is why I went hysterical when I heard about the delay in the heparin.
Buzzing in my head usually comes on when very tired and on waking because I sleep so badly now the tiredness causes the buzzing.
Anyone with sjogrens out there, have you used a humidifier in bedroom? I bought one but it seems it has to bestarted after seven hours, so it stops during the night and I wake with a dry mouth like cardboard. I dont get any sleep cos of that EITHER.
Please tell me were folk here diagnosed with Sjogrens by paper test in eyes alone, or did you have the lip biopsy.
I have a DREADFUL sore throat today and coming down with a cold, gee......
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 10/28/2007 11:22 PM (GMT -6)   
Hi Ann,
It sounds like you had a pretty nasty panic/anxiety attack. Everything you described is classic to that disorder.  Have you had these feelings/reactions before?  I have an anxiety disorder which was very bad earlier this year.  When I was reading your post it brought back feelings I went through...
I have a severe sensitivity to fluorescent lighting. I get anxiety/panicky when I'm in a grocery store too long or any place with tons of fluorescent lighting.  I get feeling physically sick when I'm under them, which then causes me to get anxious.
My sjogrens was diagnosed with a blood test.  I can't remember the test, but I came back positive for the sjogren's antibodies. I think either of those tests, the lip or paper test will be worth while too.  I haven't had either of those done.  My sjogren's is very mild, I hardly ever notice it.  But using a humidifier would definitely benefit you.
Any time you get feeling like you're out of control with your emotions, or if you're feeling anxious or in a panic, deep breathing really works.  Take very slow deep breaths in through your nose, and then slowly exhale through your mouth.  Do that about 7 times, and then breathe normally for a few ( or you'll hyperventilate! Don't need that added to your problems!), then keep doing the deep breathing until you calm down.  It works like a charm for me.  Also, just remember, you're not in danger. Your body is reacting like you are, but you're okay.  You were in a room with other people and some bright lights.  Nothing that would harm you.  It's important to maintain perspective and realize you're okay.  The buzzing, sweating, etc,  you get are also symptoms of anxiety.  I honestly tell you Ann, I've been through this and still deal with it from time to time.  But using tecniques to calm your body down really work.  Check out this website and see if what you think.  These people saved me!  It really does sound like anxiety to me. You'll be okay. Talk to me whenever you want, okay.  
Big ((((hugs)))),
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 10/29/2007 11:18 AM (GMT -6)   

What you described also reminds me of a migraine headache, and I would think that all the lights and commotion could have caused a panic attack as well. I mention migraines because flashing lights, strobe lights, ceiling fans with lights, etc. will trigger a migraine. When my migraines start, I don't have the headache immediately, but usually about a half hour after I have visual disturbances. If you mention this to your doctor, and he thinks it mght have been a migraine, he can give you a prescription in the event it happens again. I don't know much about panic attacks but it appears that Ginny gave you some good information.

Hope you're okay now.


Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Jenny S.
Regular Member

Date Joined Oct 2007
Total Posts : 80
   Posted 10/29/2007 7:24 PM (GMT -6)   

I also have sensitivity to light - start blacking out & getting a migraine with too much exposure. Definitly should run that one past your Rheumy.



I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)·Lupus(2001)

Rx: Pletal 100mg·Norvasc 10mg·Prednisone 5mg·Plaquenil 400mg


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