Posted 10/30/2007 6:08 PM (GMT -6)
Hippi, I could use a good dose of humor right now! I'm glad we can laugh at ourselves. ((((hugs))))
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted 10/30/2007 6:58 PM (GMT -6)
Hippi,
  Your definately not alone in this....((Hugs)). I hope you recover quickly from your fall. I run into things all the time and loose my balance alot. It gets worse when I'm more tired than normal or flaring bad. Take care and be careful. Keep us updated. You will be in my prayers.
                                                                   Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted 10/30/2007 8:32 PM (GMT -6)
Hi hippi,
I am already so naturally clumsy I couldn't be any clumsier! And when I get stressed out it gets worse and it is so humiliating. I'm the one who gets mad and stomps aways and falls on her face! I also get momentary disorientation, which adds to the clumsiness because you can't think about your body movement when you are trying to get your bearings or just shocked that you lost them for a moment or two. I never could find my way to my cube at work or my office at school, no matter how many years I was there I would still get lost and go the wrong way, it is really embarassing. People would kindly attribute it to me being so focused on my work all the time that I was absentminded. I would joke I lacked spatial skills. I would forget people I worked with, even closely, their names or have trouble recognizing people when I see them outside of work. People thought I was rude or self-involved or just a space case, but the truth was that my brain and memory don't work very well. I have a lot of trouble with things seeming unfamiliar though they are familiar, even my own house at times. Its the opposite of a deja vu. I think it has to do with an imbalance of dopamine, or just stress sometimes.

I'm really clumsy though, always have been. I think that under stress we all have trouble, though it may be worse for us because stress for us can be really bad. Please be careful and try to take someone's arm. I do it alot when I can. I also use railings and I've learned to go slow, even when I'm in a hurry because I've really hurt myself falling before and it doesn't save any time if you fall. I don't know if a cane or umbrella might be helpful. I know having the right shoes makes a big difference for me.

As for toe stubbing, oh gosh I do that all the time. and I hit my head alot, hard, like on the car getting inside and stuff. I think its because I think my back will bend more than it does when I get in and my weight brings me down hard which really smacks my head good. I've actually seen the little tweeting birds circling my head, and my eyes turned into two Xs, LOL. I guess that's what's wrong with me, I don't know.

Just please be careful. If only we still rode horses, then we wouldn't have to worry about falling!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 10/30/2007 8:49 PM (GMT -6)
Count me in....I have to go into peoples houses. I can be there anywhere for 4-6 hrs at a time. Sometimes, I will fall over, get dizzy and forget where I place my tools. All, I can think is OMG they think I have been drinking. Don't even get me started on trying to remeber something.....OH NO! OH NO NO!!
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

Posted 10/30/2007 8:56 PM (GMT -6)
Oh Frank!!!  That is awful!  I have to admit that I wonder if my clients think I'm "on something" sometimes.  I often have to climb a 4 foot ladder to get "the perfect picture".  Well, on my dizzy days, that just ain't gonna happen.  And when I try, I'm like a bobble-head trying to regain my composure.... It's not a pretty sight.  Oh yeah, you forget where your tools are, and I forget where my second camera is... Right, it's slung across my shoulder!  That's it!  DUHHHHHH.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted 10/31/2007 8:21 PM (GMT -6)
ginny, the other day, I had to move a computer router from one location to another place. So, I tolde the customer what I was going to do. I got my power drill out, made a couple of holes for the coax, layed the drill on the garage floor. Then went to my van to get the coax wire and jacks. Then as I was there....I went looking for my drill...I could not believe that iI could not find it (thought that I had left it at my last job). Got mad with myself, very mad....even used all of my golfing words. Then walked back into the garage....There it was, the drill on the floor....DUHHHH...
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

Posted 10/31/2007 9:01 PM (GMT -6)
You and your drill, Frank! I think you need to wear it around your neck!  You could use some of your cable wire to make a macho-man necklace! While you're doing one for yourself, could you make one for me too!  I'll strap my camera around my waist like a belt!  You could market something like this and sell them in pharmacies!!  Oh man, don't get me going.  I have IDEAS!!! tongue
 
Stay warm tonight!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted 11/1/2007 1:39 PM (GMT -6)
ginny, you are so funny...then I would just fall over.
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

Posted 11/1/2007 4:20 PM (GMT -6)
Oh......Yeah.  Didn't think of that.  The belt idea might not work either. Hmmmmmm.....I know.  You need to put a locator beacon on it.  One push of a button and you'll have that drill making all kinds of noise!  Told you I have ideas! Hehehe......
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted 11/1/2007 10:35 PM (GMT -6)
Frank--
I was a programmer and sysadmin and its so funny because people thought I was really smart and concentrating so hard and I was really like having trouble! And its a good thing our customers don't really know what we do, so perhaps they cut us slack, thinking that the job involves more thought, like the absent minded professor. I thought of an excuse "my mind was on packet structure" or "router configuration" or some such technical thing like "ISO standards" or other crap or analysing twists per run. They never understand anyway so you can just make them roll their eyes and get bored and they will leave you to your tripping and forgetting in peace. It always worked for me.

I got so I could do what I needed to do in my sleep, as I'm sure you can, and often did when the pager went off at night, and I didn't have to get up so tripping or falling out didn't happen as much, but getting lost was horribly embarrassing. I did get to the point working third shift when I couldn't tell if I was asleep or awake anymore, and I learned that if you get in the left lane of a major interstate at four in the morning and point the car straight, I could get a few more minutes of sleep that way....don't try this at home.

I think Ginny was onto something with the belt, but maybe just tie them to you on a long cable to your belt, so you can still move around. Then when you need to pick them up, all you need to do is pull on the cable and reel them in. See great minds... :)
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Posted 11/2/2007 5:30 AM (GMT -6)
You are right Marji, I tell people all the time "that any monkey can do this job". Most people just don't care how everything works...If, you work like you know what you are doing people think you really know something and smart....HAHAHAHA

have Great Day!!
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES,  LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 

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