I'm so sorry you and Josh had to go through that. Unfortunately, been there many times and just had to keep trying docs till I got a good one, then the good doc was shaking his head in disbelief that no one did anything. I'm glad the pediatrician is helping out and maybe she can help you find a better rheumatologist. Is Josh taking prednisone pills? Has he ever had shots? They don't last as long in my opinion but you bypass the stomach. Another possiblity would be to find out if he has irritable bowel syndrome, I remember him having some constipation a while back. Then, some dicyclomine (bentyl) an antispasmodic that does wonders for gut pain. You might ask about it if his pain is abdominal, like gas pain. If in the stomach, I wash the pills down with lovely old maalox, which makes them take a little longer to work, but keeps me from getting heartburn. My mother used to give me aspirin in a big blob of jelly to keep it from hurting my stomach when I was little.
I agree with the various remarks regarding the rheumatologists' collective incompetency and rudeness. More and more large medical centers are recruiting docs like these. They do little or nothing but take your money, and are consistently incompetent when something bad does happen. I would strongly urge you to ask your doc to help you find someone better, even if you have to travel a little. I would have such a hard time trusting them and it is doubtful they will ever admit they were wrong or apologize or even acknowledge their inappropriate behavior. I hope that you keep a file of josh's test results and other medical labs and stuff. I kept one for my son and for myself so that I could shove evidence in their face, but I've found that with that type of doctor, even with positive test results and adequate proof, they will still not adequately or appropriately care for your son. Perhaps, your son's problems scare them and are over their heads. At any rate, I wish you both the best and hope that you find another option for Josh's care, these people just don't seem to care at all. And I don't think the woman doc is any better than her resident after all, she hired him and depends on him for intake.
I would think that just about any pediatric rheumy would care more and provide better care. I hope that your primary care doc can fill in until this rheumie visits the wizard and gets a heart and a brain or you find a different doc. Perhaps your pediatrician will have the same problem with them and get you in to someone she likes that is a better doctor. I will be thinking of you both and praying for you.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments