Well . . . you've crossed the threshold into the world of Lupus. Part of you is validated by the dx and explanation for your pain and part of you is overwhelmed by the reality of having such an unpredictable disease.
Do I remember right that you are over 40 years old???? Not sure. First . . . I'm so glad you found a doctor who will be proactive for you. The plaquenil is first guns and I would bet that 95% of us take it. Most of us have tried going "off" of our meds while we are feeling better . . . only to land back in trouble again. The plaquenil is actually one of the less risky meds and is well tolerated, without side affects, for most of us. If it did happen to affect the eye, going off of it allows the eye to return to normal. You should see an opthomologist before starting the med so that you have a base-line chart of your normal eye. Then, another exam in 6 months and then one every 6 months to one year, depending on your dose of plaquenil. Your doctor did good starting you on 200mg so your body can adjust before adding the second pill. Sometimes, initially, it does cause a bit of stomach discomfort.
Plaquenil gradually builds in your system, so you won't get the full affect for about
6 months. . . but you will have noticeable benefits in about
2 months. Some people seem to get faster results . . . but you won't be sure because you are feeling ok right now.
I am one who has gone off of it a couple times for extended periods. Then when I end up in another flare, I've tried to work through it w/o the plaq . . . but have found that I really do need to stay on it as a maintenance med even when I'm feeling well.
I'm going to be in the same boat as you . . . going to see new rheumy . . . finally . . . on Nov. 15 and I'm actually feeling pretty well right now . . . so I hope he takes me seriously and we can communicate well. I'm SO glad you found a doctor who is proactive!! You'll be glad too when your next flare hits.
It takes a bit of time to accept the new dx . . . even though you were pretty sure about
for a long time. Its a grieving process and this is the best place to help you work through it.
There are lots of us here who have had this for many years and don't have any organ involvement. I am gimpy on occasion but have found great ways to deal with it and hide it and it has taken a long time, but with the help of the kind members here, I've learned to pace myself in a way that staves off massive flares like the one that sent me searching for this forum. Pace, pace, pace. Rest when you need to. Eat healthy. Find a great doctor . . . you are right on track!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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