Well ok I'm home. My doctor said she read what the rheumy said and said "Who is this guy"? She is adiment that I have Lupus. She said he requested her to do certain blood tests on me so she did today. She said there is nothing in any of my old tests that point to PBC. But she is doing the tests and sending him a letter and sending me back to see if he changes his mind. I feel like a ping pong ball!
She drew blood, I've been having some chest pains lately so she did an ekg and said it looked good. Tomorrow I go in for a ultrasound of my heart to see what's going on there. She insists I have lupus lung. I have an appt with the pulm on the 6th. So I have a years worth of xrays to take with me. She gave me a new perscript
ion for pred. and increased my pain meds to 120 vicodin a month. She did another lung function test on me too and said I'm holding my own at fev14. which is not real good. I asked her how long I have. She said 10 to 12 years. So unless I get pnemonia again I still have some time. It's actually getting sick that is taking the years off my life. We are kicking around the idea of having me on antibiotics permanently but I am afraid if we do that and I get bad anyway the antibiotics won't help. Well that's it for now. I'm a little sad and very tired. I do look forward to hearing what the pulmonologist has to say If it's lupus lung maybe there is somthing that can be done for it. Things change all the time.
thoughts and prayers
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor. Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
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