Did they ever test your blood insulin to see how high it is? This will give them some idea of whether your pancreas is over active and producing too much insulin or if there is another problem. You probably know the normal range is 80-120 and I feel hypoglycemic at 80, I have hyperinsulinemia, I produce too much insulin and used to be hypoglycemic, but then my cells became more immune to insulin so now I go high and low blood sugar. I'm also having severe digestive problems and my rheumie told me that it is due to my pancreas being attacked by my immune system. It does get better with prednisone.
There are benign tumors you can get, not just on your pancreas but in other areas of your body and these tumors produce insulin. If you have too much insulin, then you will metabolize sugars too fast. Also, they should check you for fatty liver through an abdominal ultrasound, they can check the pancreas at the same time to make sure there isn't any major abnormal things there and surrounding organs. It is possible you have a metabolic disorder that causes your liver to store all sugars as fats inside the liver. Fatty liver does not mean you are fat. I was 103 or so when I first had fatty liver and was also hypoglycemic. That's why I say they should check your insulin to see how much you are producing. If you have fatty liver, eating, especially carbohydrates, can make it worse and the diet is very different from what they would normally give you so you really might want to talk to them about
it. Your liver plays as much a role in sugar metabolism as your pancreas does. I'm glad you are getting your thyroid and all checked. I think there might be meds that even effect your blood sugar too.
I take glucophage for my fatty liver and it has stabilized my blood sugar at 100, no matter what I eat pretty much, though I do try to stick to the diabetic diet. I used to dive low and go high and it was awful because either way I felt like crap and couldn't tell whether I was low or high without testing so if I couldn't test, I'd eat the wrong thing and make it worse. I hope that they get you straightened out soon. It is an awful feeling. Maybe they could put you on an anxiety medicine while they are figuring this out, like klonopin or xanax or something. They did that for me when I had to go off my thyroid meds, but I take one anyway, but I got it increased during that time.
I try to eat carbs in the morning to bring my sugar up and oatmeal is good because the fiber lowers the effect of the carbs some and is good for my ailing gi and sticks with me so there is less of an up and down. I don't know what they recommend for you, but I imagine they want you to eat foods that bring your sugar up and keep it up for a long time. Those are the foods I have to avoid.
You pancreas produces enzymes that help you digest food, so usually if you have problems, you will not be digesting your food, and, my doc told me, your stools will float. If they float in the bowl, its a sign your pancreas is not producing enough enzymes. I've been searching the stores for pancreatic enzymes and cant find them, because I'm supposed to take them.
I hope you make through your wedding shoot ok. I have some funny stories about
photography, I used to work for a photographer taking green card pictures. I have some funny stories. He was a real trip.
Here are some links you might find helpful:
Glycogen storage disease (I have this and I'm an adult, this just talks about
children but you might find it helpful)
Fatty liver talking about
role of sugar and liver:
Fatty liver and carb metabolism, how widespread it is:
Chronic Fatigue and hypoglycemia, good discussion of hypoglycemia, different causes and role of liver:
Hope this helps and that they get the right tests run. There are so many people here ending up with liver problems. The meds we take aren't so easy on the liver either. I wish more docs were up on this condition and were willing to do the abdominal ultrasounds as they are a good way to screen for pancreas and liver and gallbladder problems in a general non-invasive way before running more specific tests. Well I hope you feel better and that your sugar goes up and stabilizes and you get some relief. I hope the tests uncover the key to solving this problem for you. Best wishes.
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments