((((((((((Sharon and Daughter))))))))
Fatigue really robs you of life, doesn't it?? I'm so sorry your daughter is missing out on so much. You have some good questions, but we've found that each of us is quite different. I can tell you that my fatigue comes and goes (somewhat) with each flare. While I'm feeling well, I always try to engage in some mild physical activity (walking, light weights, toning, stretching, housework, etc.) making sure to pace myself so as not to cause a flare. It is thought that if we build our strength during our well times, we don't lose as much ground when we are sick.
I actually had a flare that lasted about
15 months. Within that flare, I had ups and downs . . . but every time I tried to push myself to do more, I would end up worse again . . . so we need to be patient and let our bodies heal, while being careful not to just do nothing when we really could be a little active. It is a real dance we learn to do. Sometimes we can do only 5 minutes at a time (put in a load of clothes or start the dishes) and then rest. But, learning where that boundary is takes some trial and error.
Hopefully you'll get more feedback from the others here.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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