Hi Sharon, I'm so sorry I know how much it hurts to see your children suffering. Like Rosie, I have been in a flare but the better part of a year before. Plaquenil has kind of moved me out of it after about
6 months. As for the steroids I can bounce off the wall on 20mg. if I'm not too sick but if I'm really don't 60mil. wouldn't get me out of bed. right now I managed to get my dishes soaking in the sink. I don't know how long it will take to get the first load done and I doubt I'll finish them all today. Normally it would take about
20 min. to do the dishes and straighten the kitchen. Not anymore. I have a pile of clothes on my dresser that I washed and couldn't hang up now they are all wrinkled! I have a good friend that has infusioned every 3 weeks. You'd think that would make her more peppy but it makes her more tired. It takes about
2 weeks for the fatique to go away so we have one week to do somthing between infusions and fatique. That's if I'm good at that time! The whole thing Stinks! It's not fair and for somone so young it's really cruel.
hang in there mom things can get better with the proper care people have been known to be symptom free for long periods of time. We usually tend to hold our breath and hope for as many good days as possible before we crash again.
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor. Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I