My First Post Here, just diagnosed with Lupus

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Miss Magnolia
Regular Member

Date Joined Nov 2007
Total Posts : 95
   Posted 11/2/2007 2:34 PM (GMT -6)   

I will be 55 in a few weeks, I am married with one daughter and two grandchildren. I work full time in a Law Office in the suburbs of New Orleans, and yes, working is getting harder by the day. And yes our house was spared in Katrina, we had exterior damage, a downed fence and our shed blew away and yes I did have a flair after Katrina.

I had been ill for years, gone to many doctors and they couldn’t find out what was wrong with me. I just got diagnosed last month and I am going back to the rheumotologist Tuesday and this time my husband is going with me. The nurse I work with recommended this rheumy.

My daughter works for pulmonologists and the other day she got some old records of mine from a rheumy I went to 3 years ago and it showed I had high titers for Lupus. He did not give me the results and I was shocked when my daughter called me the other day and told me she had these records. I am not on any meds yet, as I wanted the tests done again when I was there last time, but with these old tests coming to light, I don’t feel like I need more test to prove I have lupus. I think I was in denial but now it all makes sense. The RN/Paralegal that I work with looked at the old tests and said she cannot believe this doctor did not give me the test results three years ago. He just referred me to an infectious disease doctor who told me I had Epsteins Barr, she mentioned nothing about Lupus. I have been treating myself with over the counter meds, like Ibuprofen all this time.

Please excuse me as all this is so new to me, the terminology and test numbers, etc. Today is the best I have felt in a week.

I am so happy to have found other people with Lupus to learn from and share.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/2/2007 3:19 PM (GMT -6)   
Hey Missy Magnolia!!! Welcome to the forum!

I'll be 55 this month too!! and I have two grands. I was also a legal secretary!! Have been home for about 3 years now. Sorry you had damage from Katrina, but glad your home was spared. I bet that did cause a flare!!

I'm glad you found a good doctor who was able to dx you. The +ANA by itself does not warrant a lupus dx, but it is one of the 11 criteria used for diagnoses. A diagnoses requires 4 of the 11. There is a link in my signature showing the list.

I hope you'll update us when you see your doctor again and get a treatment plan. Its good that you are taking hubby with you. Its good that he has interest too.

Glad you found us!! Sending you cup of hot tea!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 11/2/2007 6:14 PM (GMT -6)   
Hi Miss Magnolia and welcome. You'll find a lot of great people here and a lot of support. Your story sadly sounds familiar - so many of us go through years knowing that something is wrong but docs can't seem to figure it out. It sounds like you are on the right path now and you are armed with a lot more knowledge about your past labs - how awful that no one shared these with you or followed up on them. I really hope your appointment with the rheumy goes well and please let us know what happens.

Tale care and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 11/2/2007 8:28 PM (GMT -6)   
Hi Miss Magnolia!
Another welcome to you! Well, you now know what you have, so you can get the proper treatment. I am also glad to hear that your hubby will be going with you to the appointment.  Good to have that support.
Take care,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Miss Magnolia
Regular Member

Date Joined Nov 2007
Total Posts : 95
   Posted 11/2/2007 8:58 PM (GMT -6)   
Thank you so much for the kind welcome. I finally don't feel so alone. I have no idea what to expect and I am totally open to learning from others. I am so happy to have found you guys!

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 11/2/2007 9:42 PM (GMT -6)   
Hi Miss Magnolia, I remember when I first came here I felt so overwhelmed. There is so much to try to absorb. But one day at a time I am learning. Hang in there we are with ya!
hugs carol
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 11/2/2007 9:49 PM (GMT -6)   

Hey Ms. Magnolia,

           I think I may be your neighbor.  Are you on the Northshore?  Who is your rheumy?  I live in Mississippi just North of Slidell.

Sorry to hear you have been diagnosed.  You will find a lot of help and support here.  God Bless you,   Judy


Miss Magnolia
Regular Member

Date Joined Nov 2007
Total Posts : 95
   Posted 11/3/2007 7:44 AM (GMT -6)   
I live in Kenner. And I am going to Dr. William Davis at Ochsner. The nurse/paralegal where I work recommended him.

Well you sure are close enough! My niece (who has rheumatoid arthritis) lives in Tylertown Mississippi. Nice to see someone close by here. I have so much to learn, even though I have been in pain for years, this diagnoses is all so new to me. And God Bless you too for being here.

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 11/3/2007 3:17 PM (GMT -6)   
Welcome to our forum Miss Magnolia!  Lots of us are familiar with the "denial" phase and it unfortunately comes and goes.  This disese makes entire lifestyle changes.  You'll find many caring, supportive folks here to help you.  Please let us know how your rheumy appt goes and if you have questions there's always someone here who can help.  Love, Butterflake

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna

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