My aunt who had lupus died

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 11/4/2007 1:41 PM (GMT -6)   
I just heard from my dad this morning that his sister was found dead.  She's had lupus since she was a teenager and she was only in her late 50's.  It's just very sad.  He health had been going downhill for the last few years and I'm betting she had some CNS involvement because she completely stopped taking care of most of her affairs such as paying bills or managing almost anything in her life.  She was single and didn't have any family nearby, just a good friend who checked in on her regularly.  My dad and the other brother helped as much as they could from a distance and made trips to see her a few times a year.  My aunt also had diabetes which I'm sure she probably didn't control well and I bet it also contributed to her death.
It was because of this aunt that I even knew what lupus was when my doctor first mentioned it to me.  I'm glad that I have really great memories of my aunt from throughout my childhood - she was a very loving person.  I feel bad because I want to be at the funeral, but she was out on the east coast and I'm in the midwest and don't think I could travel right now.
On a side note, I don't feel well at all and am hoping I'm not heading into a flare.  THis morning my son woke me up early because he was in pain and I got up with him to get him some medicine.  I ended up stepping on a wasp and it stung me several times (I had no idea it would be that painful).  I didn't have an allergic reaction, but I have felt flu-ish ever since.  I hurt all over, have chills and am very tired.  It could just be a coincidence too since I hadn't been feeling well.  Has anyone else had a weird reaction to a wasp or bee sting?
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



Please allow HealingWell to continue helping others by donating:


Co-Moderator: Lupus and CFS Forums

Miss Magnolia
Regular Member

Date Joined Nov 2007
Total Posts : 95
   Posted 11/4/2007 1:55 PM (GMT -6)   
I am so sorry about you Aunt, and her death may have effected you more than you realize.

Years ago, I was stung by a catapillar and it gave me fever. I don't know about the wasp. Sorry. Is the stinger still in there? Maybe you can call a pharmacist and ask him what to do.

Again, I am sorry to hear about your Aunt, and I hope you aree feeling better soon. Keep us posted on that sting.

Regular Member

Date Joined Aug 2007
Total Posts : 171
   Posted 11/4/2007 2:07 PM (GMT -6)   
I am so sorry about your aunt passing away. It is so hard to lose someone we love and respect. When you hear of someone at that age passing away it always seems to make it a little harder because you do not expect someone that young to pass away.  Maybe things will turn around and you will feel better enough to go but since she had lupus she, above anyone else would understand why you couldn't be there.
I've never been stung multiple times by an insect but it could very well be your body reacting to the stings.  I hope that you start to feel better and it isn't a flare starting up.  My thoughts and prayers are with you.
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, RLS, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Clinoril, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Loratab ,Percoset, Toradol
There is no psychiatrist in the world like a puppy licking your face.

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 11/4/2007 3:09 PM (GMT -6)   
  I'm so sorry to hear about your aunt and that you and Josh are feeling so poorly as well...(((Gentle Hugs))) to you both.
  I'm allergic to bee and wasps. I always get a red streak right away that starts traveling...also a fever/swelling and alot of pain. I have to get a penicillin shot right after a sting.
  Please take care and keep us updated. You, Josh and the rest of your family are in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/4/2007 3:53 PM (GMT -6)   

You might want to take some benadryl right away for that sting. It might help stop the reaction. Be careful, because that could really cause some trouble. If you continue feeling ill, call the doc or go to ER . . . they'll get the allergic reaction halted . . . actually, duh! Prednisone would probably be a better choice. . . if you are allowed to up your dose a bit.

(((((((Hippi))))))))) that has to be disturbing to lose your aunt so young AND the reality check of her having the same dd as us. I don't even know her and I'm feeling weepy. Some hot tea coming your way . . . you are right, you should not try and go to the funeral. A well written sentiment is very meaningful to the family. I have always appreciated the kind words that I receive from others during a a time of sadness like that. I've also taken to send fruit instead of flowers . . . its no more expensive and it is very much appreciate and just as beautiful to look at.

(((((((((Josh))))))) . . . oh no . . . poor kid . . . Hippi, sounds too simple, but do try having him use an electric blanket. Before I knew what was wrong with me, I had a winter were mom had given me an electric blanket for Christmas and my pain actually disappeared . . . seems I was sleeping a bit tense and the heat caused a deeper sleep or something. I know you need to be careful about those blankets with youngsters, but it sure would be nice to see if it helps. If you think he is too young to try that, pack some of the grain bags around him when he goes to bed . . . they are SO soothing and there is something about the corn in there that really supports the back, etc.

Hugs and blessings dear sister!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 11/4/2007 4:23 PM (GMT -6)   
Thanks Magnolia, Gidget, Babs, and Rosie for the kind words. I think the whole thing about my aunt is still sinking in - it has just made me really sad.

I was reading some about wasp and bee stings and read that prednisone is used for people who have reactions, so you are right about that Rosie. I don't know that it is actually an allergic reaction because I don't have a lot of redness and swelling, just pain that goes from my foot up to my knee and then I just feel flu-ish and head-achy. I think some benedryl might not be a bad idea though just in case.

Rosie, thanks for the idea about the electric blanket for Josh - it might really help a lot, especially with morning pain and stiffness. I'll probably have to pry him out of it in the morning to get him up for school.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



Please allow HealingWell to continue helping others by donating:


Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Jul 2006
Total Posts : 831
   Posted 11/4/2007 5:09 PM (GMT -6)   

Hippi I'm so sorry to read about Aunt.

I really do hope that you get to feeling better along with son. It's been years since I've had abee or anything sting me. Please take care of yourself.

Electric blanket sounds good to me.



Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 11/4/2007 7:16 PM (GMT -6)   
HIppi, I'm also sorry to hear about your aunt.  Take the time you need to grieve. 
How's the wasp sting tonight?  Rosie had good advice about the Benedryl and prednisone.  I hope you're feeling better.
Lots of love and hugs, sis,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 11/4/2007 8:08 PM (GMT -6)   
Hi Hippi:

I've just from Florida yesterday evening and now see you're post. I'm terribly sorry about your Aunt. I know how difficult it is to loose a family member. Please make sure you take time to grieve and get as much rest as you possibly can.

I'm sorry to hear about the wasp sting. I'm horribly allergic to bee stings, so much so I need to take benedryl right away and 100 mg of pred. I hope that your symptoms are better and that you're feeling better.

Rosie gave you a wonderful idea for Josh. I sleep with a heating pad at night. My hubby turns our heat down to 62 degrees in the house at night. It's now getting into the 30's at night outside so my house is pretty cold in the morning. I'm sure the heat will help Josh. I hope that you both begin to feel better soon. ((((hugs))))) to you both.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 11/4/2007 9:58 PM (GMT -6)   
Gosh hippi, I'm so sorry about your aunt. It must have been hard for her, all alone. I can't imagine it. I'm so sorry for your loss. ((((HUGS))))

and wow, being woke by your son in pain and going to get him medicine and stepping on a wasp! What a way to wake up. I hope you feel better soon and that the electric blanket works for Josh and that you and Josh feel better soon.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 11/4/2007 10:08 PM (GMT -6)   

So sorry about your aunt. How sad. My prayers are with you and your family.

Another option for you and Josh to help with the pain is to use an electric mattress pad. I bought one last winter and I can hardly sleep without it now! Mine comes with dual controls to controll the heat separately on each side. The heat goes off automatically after 10 hours or if you want, you can turn it off earlier with the controls. The pad we have is warmer at the feet area and slowly emits less heat at the area closer to the head. I highly recommend a mattress pad to anyone who will listen! The pain relief is incredible. Just a bit of a warning: it is harder to get up on cold, winter mornings!
Audrey Ann
Lupus and RA and LOTS of Medications!


New Member

Date Joined Nov 2007
Total Posts : 11
   Posted 11/4/2007 11:25 PM (GMT -6)   
Dear Hippi,

Very sorry to hear about the news....

Bless your heart,


Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 11/4/2007 11:38 PM (GMT -6)   
My prayers and sympathies are with you. Please take extra care of yourself.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Meds: Plaquenil, Zyrtec, Prilosec, Nasacort, Prednisone, Prozac daily.
Meds: Epinephrine, Benadryl, albuterol (as needed).

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 11/5/2007 10:25 AM (GMT -6)   
Thank you so much for all of the support. I heard from my dad this morning and it sounds like he and his brother are pretty overwhelmed with everything they have to do and I can tell that my dad is taking this pretty hard too. As sick as my aunt was, I doubt that any of her affairs are in order and there is probably an overwhelming amount of things to go through. I feel so bad that she was alone, especially at the end - she was just a wonderful person.

The wasp sting is much better today. I ended up pretty sick yesterday with a lot of pain and a fever, but I have no idea if it was lupus or a reaction to the sting. I am planning to go out this week and get an electric blanket or heated matress pad for Josh and maybe one for myself too. Josh is finished with his prednisone now, so I'm holding my breath to see how he does. I'm just hoping he doesn't crash.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



Please allow HealingWell to continue helping others by donating:


Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Oct 2007
Total Posts : 33
   Posted 11/5/2007 11:05 AM (GMT -6)   

So sorry for your loss.  It is harder even to be far away.  I am not living close to any living relative so it makes the grieving process harder to deal with.  I hope your son has better days.


Sharon-Mother of a 17year ol with CNS Lupus(brain),SLE,APS,Stoke

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 11/6/2007 1:00 PM (GMT -6)   

How awful for you and your dad. And knowing she was so young and had lupus must have had even more of an impact on you. I'm so very sorry for your loss.

I thought you were feeling better and it saddens me to find out that you and Josh are both feeling bad. It seems like your bad news just doesn't end. I guess Josh is totally off the prednisone and that must be why his pain is back.

Take good care of yourselves. Are your wasp stings any better? Having several on the bottom of your foot must be excrutiatingly painful and when they start to heal they'll itch like crazy.

Darn. I was hoping this would be a good week for you. Hang in there and let me know how you're doing.


Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 11/7/2007 7:15 AM (GMT -6)   
Hi Hippi, I just wanted to add my condolences as well. Sorry it is over due. I'll be praying for your family.
As for the wasp sting! I got stung once. I was walking down stairs and felt somthing on my leg under my jeans Not thinking I wacked it. I killed it but not before it stung me a good one. I felt like somone came running at me with a very large very dull needle and jammed it half way thru my thigh. I didn't get sick but I was literally very Black and very blue from my hip to my knee. It was amazing to me how much damage it did. I hope you are feeling better now.
God bless
God Bless
Lupus like symptoms, with pbc symptoms,but of course that is subject to change in a moments notice! End Stage COPD w/CHF, Cervical Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 3x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 10:06 PM (GMT -6)
There are a total of 3,005,614 posts in 329,243 threads.
View Active Threads

Who's Online
This forum has 161786 registered members. Please welcome our newest member, Wildcat44444.
279 Guest(s), 5 Registered Member(s) are currently online.  Details
Wildcat44444, Kristin93, Healing98, InTheShop, noodlesnoodles