Well, my week of denial is over so I now have to face the inevitable. Saw the optomotrist last week and was told that half my left eye went completely blind and half my right eye was almost blind. Says it is progressive and not expect it to come back. Also said he thinks it is the optic nerve. I need to go to a opthoneurologist for the cause of my blindness. I wasn't too sure what to make about
the doctor's comment that he only seen this problem with MS. I explained I had lupus, and he said maybe I had lupus and MS. Well, I do have the CNS lupus so I guess that is similar to having both. I never heard of having MS and lupus. I also never heard of going blind from lupus.
Is sclerosis of the optic nerve normal for lupus? I also have sclerosis of the mitral valve. Sclerosis here and sclerosis there. It is getting to be a common theme these days.
Has anyone had any relative experience with this or with going blind? I don't know anyone blind so I am clueless when it comes to this health aspect.
As always, any help/thoughts are appreciated. Thanks - Kristin
Dx: Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx: Atenolol, Aricept, Flexeril, Motrin Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.