Lupus is the disease with a 1000 faces and often mimics other diseases. Almost all of us have had difficulty getting a diagnosis and it is very frustrating. Keep a log of symptoms, doctors visits, tests and anything else that affects your health. It might help the doctors with symtpoms and diagnosis.
It took my docs about 10 months from the first symtpoms but they were able to confirm lupus and then mctd within 4 months of the first flare. However, I had telltale symptoms in my blood work (low platelets and mild anemia) for 15 years before the first flare with no diagnosis at all. Fortunately, my doctors keep looking and testing my blood periodically even though I seemed very healthy.
Diagnosis can be very difficult and frustrating. Have you gone to a clinic like Mayos, Northwestern, Johns Hopkins, Cleveland Clinic where they can look at many things at once?
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it." Helen Keller