Thanks Rosie and hippimom,
I got my ACTH stim test today, where they give you a shot of my favorite drug, cortisone, and then they measure your ACTH to see if it went up as it is supposed to once you have adequate cortisol, and so they know if your adrenals are working and its your pituitary that is messed up. I think my adrenals did work because I felt better than I have in a long time and I was instantly, like 15 min after the shot able to pee properly and felt so so much better, so it looks like its related. The bad news is that pituitary or adrenals I will likely have to take pred or something like it every day for the rest of my life and all of the wonderful side effects are bad for me because I'm not on and off, but on it all the time. My family doc said, "you don't want to be on that all the time, honey, the facial hair, weight gain, the bone loss, the cushinoid symptoms..." and she went on and on, but what if I do have to be on it every day? That kind of sucked, but I decided I'm going to be on as least as possible, if I have to, and make sure that there is no other way to solve the problem. This polyendocrine deficiency is real crap and common when you have liver and associated AI problems. For some reason, when the liver is bad and causes a hyperimmune system, it always seems to create antibodies against the endocrine. Weird, huh? Well, I stopped by the urologist because they are next door and they saw me with no appt. and they were real nice and gave me some detrol and tested my urine and I have no UTI, just AI bladder problem or possibly now its because of the adrenals, and he's pretty sure since I told him about the test. So that part is good that my bladder suffering may get better with endocrine tx. I feel good today, steroids! But I can't pee anymore again, although the detrol is working to keep me from trying all the time. I'm to the point I want to be catheterized and if they can't solve this I'm going to ask to be shown how to do it at home or make arrangements that when it gets bad, I can have them put one in for me. That pain is nothing compared to the other.
Sorry to run on and ramble. Thanks so much for the hugs and many many hugs back and I really appreciate the support, you guys are great and I hope that you both are doing well. I'm all geeked up so will peruse the posts!
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments