Just wanted to thank you all for all the support and information you all have provided.
My daughter has had workups, etc since I last posted and all were negative or normal. Her ANA titer was positive at 1:40 but all other further testing was negative/normal.
She has been diagnosed with Lyme Disease and Mitral Valve Prolapse. She had an echocardiogram today and I have not seen one done before so it's a little scary. Hopefully it's not a serious problem for her.
All of her other abnormal labs are a result of the Lyme.
We are going to start treatment after the holidays as she will be going to visit family up in WI after Christmas and can't do IV up there.
My Dr. feels fairly certain due to her history that I passed the Lyme to her while pregnant or breastfeeding. She was also bitten by a tick 4 yrs ago so possibly reinfected at that time which sent her in a downward spiral.
It is very overwhelming but the only thing I know to do at this point is close my eyes and plow forward, right? Gotta do what you gotta do!!!
Happy Holidays Everyone & Thanks Again!
Dx-FMS 2006, CDC positive LD 8/07, Ehrlichiosis-HME 9/07, Addison's Disease, Cervical Cancer Survivor. Probably infected with Lyme since a teenager 20 yrs ago.
Tx-Doxy, Tahitian Noni, Cat's Claw, from Sept-Nov 07.
Current: 4g Rocephin 5 days on/2 days off, 1500 mg Flagyl, Urso Forte, Coumadin, Dexamethasone, Fentanyl, Percocet, Soma, Xanax, Protonix, Melatonin or whatever else works for sleep!