At what point do you just stay home from work.

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Date Joined Aug 2007
Total Posts : 206
   Posted 11/15/2007 3:03 PM (GMT -6)   
I'm going through a pretty rough time lately.  I work a full-time job in an office setting with customers (lots of ups and downs on the chairs and running around in circles), and I work a part-time job only a few days a week.  When I wake up, I'm usually extremely sore.  The last few days everything from my shoulders to my toes hurts so bad.  I keep pulling myself out of bed though-hoping that after my shower and some breakfast I'm doing better.  It has been taking all day to feel some relief and even by the time I feel better I'm starting to get worse again as I often do at the end of the day.  I am on Methotrexate and spoke with my Dr. today we'll increase my pred for now and do another taper, but I'm the type of person who doesn't want to miss work, or inconvenience others because I can't work.  So, since I won't set guidlines for myself, I was wondering what guidlines are safe to follow for missing work.  I guess I just figure that if I lay around all day I could either become very stiff or I could rest and that might actually help.  Please help me:( P.S. I haven't missed work since January because I'm "hard-core"
"Challenges make you discover things about yourself you never really knew."
SLE and Class II Lupus Nephritis

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 11/15/2007 4:14 PM (GMT -6)   
If you do like I did, you will keep pushing and pushing to keep working....and then suddenly you find that your physical and mental resources and reserves are COMPLETELY spent. And I don't mean the parts of yourself that you have control over, I mean things like burning out your adrenal glands, having your metabolism change on you, internal things you don't know are happening....

When I got that depleted, I found that I can barely keep up with the SLOW non-working life I have now. (This is 7 years later.) The reserve and replenishment parts of my body just don't seem to ever catch up when they get that burned out. (I was working 60-hr weeks, plus trying to finish my PhD, owned my own company w/employees & customer contracts to deal with, all in a fast-paced high-tech environment.)

I wish I had paid attention to how I was stressing myself both physically, mentally, and emotionally, and slowed down sooner. If I had to make the choice again, I would have forced myself to cut back to 40 hour weeks and made darn sure I had fun, laughter and relaxation rather than stress the rest of the time.

It's hard to force yourself to do, but PLEASE try to slow down and take care of yourself now. Early prevention of disease progression *will* pay off down the line.

Good luck,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
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Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 11/15/2007 10:51 PM (GMT -6)   
Lynnwood is so right. Knickers is so right. I highly encourage you to take care of yourself so that your quality of life down the road is of high quality! I just had to take a day and a half off of work to get over a terrible cold and sinus infection. I couldn't hardly talk due to my sore throat and deep cough. I was doing no favors for anyone by showing up sick. This is extreme. Sometimes I decide to use a sick day when I realize the fatigue is creeping back and my cheeks get rosier. On these days I stay in bed almost the whole day. Do you have "sick days" or a policy you must follow to take off for illness?
Audrey Ann
Lupus and RA and LOTS of Medications!


Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/16/2007 9:26 AM (GMT -6)   
Ditto from me. If I had heeded my body's warnings, I would likely have avoided a flare that last 2 years.

When I was working, I took advantage of napping at lunch-time and sometimes resorted to napping in my car before my drive home or half-way home, I'd pull into a parking lot and nap. I also did a marathon sleep twice a week. Intending to nap after dinner and sleeping right through to the morning.

When I INSISTED on pursuing a walking program, I pushed myself of to 3-5 miles at a time even though I was stumbling home. I was just sure that if I worked my body, I would improve it. Wrong! I have permanent nerve damage in my back causing awefull burning pain in my hips and down my legs.

I am now a preacher of pacing. Nuff said.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 11/16/2007 11:03 AM (GMT -6)   
Ditto to everything everyone else said. I am just worried that if you keep pushing so hard, you are going to crash and probably crash hard. I've done the same thing in the past when I was working and ened up in about a 9 month flare. Not only is this not good for you physically, but it sounds like you have no quality of life. I feel so fortunate that I was actually able to quit my job when it got to be too much for me and I can't tell you how much my quality of life has improved.

I know you would love to hear ways of how you can keep going, but sometimes with a disease like lupus, it's not possible and you really need to try to slow down some and take care of yourself. With such a great work attendance history I wouldn't think it would be a problem to take a few days off and do some hard core resting. Like Rosie said, try to find some ways to work some rest into your work day. I took advantage of lunches and breaks and would lie down - even 15 to 30 minutes helped.

I really hope you can figure out a way to get some much needed rest.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 11/16/2007 6:45 PM (GMT -6)   
I did take today off, and I am starting to feel a little better.  I have been holding my sick hours on reserve because I just don't know when I will need to use them.  I felt bad calling in on a Friday, but I couldn't move this morning.  My hubby was late to work last night because he was talking to me and trying to make sure I'd be okay if he went.  His boss told him he could leave if he wanted to, but I told him I just needed to try and get some sleep.  I also upped my dose of pred to 20 mg today even though my doc told me to wait a few days before doing that.  My pain was a 9 and the only joints in my body that didn't hurt were my shoulders.  I'm so glad I have all of you to talk to!  I did have 2 phone calls from work today asking how I was and they said everyone was thinking of me today-it's so hard to feel this miserable.  Thanks everybody, I will be more cautious in the future and I will be talking to my boss Monday about the possibility of cutting days short when I'm in this much pain.

"Challenges make you discover things about yourself you never really knew."
SLE and Class II Lupus Nephritis

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