Finally!! I had to wait 2 1/2 months to see this new rheumy and I have actually been feeling better recently (of course). Rheumy spent about
1 1/2 hours with me!! He was in no hurry, asked all the right questions. Spent a good amount of time reading my very carefully crafted 2 pages of notes. He liked the notes so well that he used those pages to add his comments and made it part of the file.
When we were nearing the end of the visit, he said he was sorry that he wouldn't be able to answer the questions I had presented in my notes . . . but that we would get to that after he gathered more info on me. He asked me to sign 3 releases to get info from other doctors and he sent me for a slew of blood work. The lab took 14 viles of blood and a urine.
I explained that I'd been dx'd with Lupus and then un-dx'd and that my blood work is boring and fairly normal other than the anti-thyroid, the inflammation markers and occasional anemia. He said that even w/o blood work Lupus is the best fit for all my symptoms. He thinks I have some overlapping issues and drew a very detailed diagram, using circles, showing how all this stuff overlaps and complicates the dx. He said that he treats symptoms, not diseases.
He is also suggesting, eventually, a sleep study since I have such a hard time getting restorative sleep. He doesn't want to just medicate it, he wants to make sure there is not some other issue there (apnea??). So for now we will be awaiting the results of my blood work (he asked the lab to mail me copies
He said that, for now, he doesn't want to do much with my meds except to increase the plaquenel to 600 mg and add salagen again.
I am extremely hopeful at this point that I've got a good doc. I thanked him for taking my symptoms seriously and he asked me if another doc had not taken me seriously. . . he made me tell him who didn't!!
I have another appointment in 4 weeks so he can go over the info from the old rheumy and the other two docs along with my blood work and make a game plan.
Wooooo hoooo!!!! It was worth the wait!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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