Hi, Rosie. Just this past Thursday was actually my 6th appt. with my new rheumy. He is just a really good listener and I never feel rushed in my appts now. The blood work your rheumy is doing sounds good. My rheumy does mine more frequently than the others did, so we can see what is causing what...hopefully. I used to feel SO stressed before, during, and after my appts. I would literally get sick to my stomach. Because I have reacted to so many meds previously, right now we are just working to get me down to the lowest possible dose on the prednisone. I will be working for the next 2 weeks on tapering to 7mg every other day...then go to it everyday if possible. As I've posted about
many times, I actually found the problem with my blood sugar myself as my previous rheumy's were saying I just had in-grown toenails. Now that I've got a rheumy who will listen to me and my PCP is working with me too; I'm controlling my blood sugar and so far not having too many problems tapering. It seems a good deal of what stopped me before was coming from my blood sugar being out of control and it being passed off as "just a little high because of the prednisone". I did experience some pain in the center of my chest during the first couple of weeks when going to 8mg everyday, so I will be watching for that to rear its' ugly head. I waited it out though. I have spoken with members of my local support group who've dealt with pleurisy pains and they said that was normal. It ended up just being a "mimic". It hasn't happened again after those first 2 weeks. My rheumy suspects with my lung involvement, I may not be able to get completely off of the prenisone but hopefully be able to go lower. He just reminded me if any new symptoms appeared or I started feeling worse, to contact him. I can even e-mail this one! It sounds like you've found one who will work with you too now.
I wish you the best of luck,