I take the generic version, Pilocarpin. I haven't experienced the sweating. I do get increased saliva, but my dry mouth is not extreme and I haven't experienced the damage to my tongue and mouth that you have. My new rheumy is looking into sjogren's and I have some blood work pending and a schirmer's test in March, but he is treating the dry mouth regardless of the dx.
I took this med for almost two years and then didn't need it for several months. I'm just back on it this week. The saliva is a bit more watery than normal saliva, but it feels good to have some moisture secreting in there. I can take it up to four times a day and it works w/i about
half hour of taking it. I haven't noticed any side affects though.
The best plus, for me, was better dental check ups. I hadn't realized that there was a relationship between the extreme plaque build up and the dry mouth. The dry mouth came on so gradually that I didn't even realize it. The doctor told me I had dry mouth. Next dental exam, everything was better than usual. Lower numbers for the pockets and way less plaque. The dentist was impressed.
I hope this helps. And I'm sending you a pot of hot tea!! You sound just miserable. I know its difficult to have another dx added to your list . . . we just learn how to cope and then another domino falls. But I think more here have sjogren's than not. Sorry sis.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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