Posted 11/21/2007 12:55 AM (GMT -6)
Hey everyone -- This is peachy reminding you to keep it real...
Yesterday, my little sister from Big Brothers Big Sisters lost her father, who was 38, to complications with AIDS. He died unexpectedly in his sleep. She is 13 years old. I've been with her as a mentor since she was 7. Her mother has been in and out of rehab ever since I've known her and actually went to jail for 6 months for violating probation. She finished her third stint (a 90 day) in rehab the day before he died.
Her father was her rock, her backbone. It looks like she and her 16 year old brother will be going to live with their aunt. Despite all of these major obstacles that have been thrown her way, she still keeps a great positive attitude. (I'm not sure if the reality of this has hit her quite yet.) I suspected that he might have been sick, but I didn't ask and he didn't tell. Turns out he's had HIV for five years now. I was diagnosed with lupus three years ago and she saw me go through all that -- the hospital, weight gain, recovery, and me getting somewhat back to normal. (Except for my boobs, of course!) My fear is that maybe she'll fear losing me .. HIV doesn't kill people that often anymore. Lupus (supposedly) doesn't either.
When you think your lupus battle is bad, think of the drama that this girl has experienced in her short 13 years and remember how she keeps a smile and upbeat attitude through it all. (Please keep her in your prayers and pray that I will know what to say / do to guide her.)
Diagnosed with lupus in May 2005
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
2000 IU of Vitamin D
Centrum Silver (and I am 30!)