Oh well thanks for responding everyone it was my GP who said that he has never seen a lupus patient with neuropathy. Mine isn't constant either it's more like little electric shocks all over off and on all day sometimes it's really bad and sometimes not so bad.
UGH Hippi my mouth is GROSS not so bad during the day as I chew gum etc but the morning I dread waking up for 1) fear of my eye lid ripping my cornea off and 2) the roof of my mouth ripping my tongue. I thought lupus was bad and the the things it brings, sjogrens is actually worse.
I am going to see my opthamologist to discuss getting punctual plugs in eyes I know a few people with dry who have had great success with them. Some say their eyes water too much now and they have to carry tissue. I will GLADLY take that over this current dry state.
UCTD and sjogrens ( terrible dry mouth) Plaquenil 400 mg with 150mg of diclofenac as needed, all biotene products and refresh liquigel eye drops