Although I am new to posting, I have been reading everyone's posts for many months. I have been diagnosed with Lupus, undiagnosed with Lupus and then diagnosed with UCTD. I recently had more blood work done and my ANA came back positive. This is the second time it has been positive. I have already left 2 rheumies because they mainly told me I had to live with all the pain and suffering. They did not want to give me any pain medications and would not let me take Prednisone when I needed it. Anyway, I have an appointment with a new rheumy this next week. I really hope that he will be more understanding.
I also have Fibromyalgia, depression, RLS, migraines, any many others. I am a middle school teacher and I am getting to where I can not work anymore. I have been working for the last 3 years with all THIS STUFF. I have already used up my sick leave days and they are now deducting money out of my check. I have disability insurance, but I do not know if a doctor will say that I am disabled enough to quit work. I am always soooo tired and sore. I think for me that the Lupus is always active. I may have a day here and there that I feel somewhat normal, but not usually. Some days are worse than others, but I am in constant pain. I also have a lot of problems teaching. I teach an Algebra class and I find that I can not remember how to do math problems that I have done for years. I also have a bad problem of remembering things. My husband will ask me if remember something and I try, but I can not remember it.
Well, that's enough for now. Thanks for listening.