Hi Doxiemom, welcome! I am sorry to hear of all the problems you've had trying to get a proper dx, it can be very frustrating! I really hope this new doctor will take the time to get to know you and the problems you have been having over the years. I too went through several rheumy's before finding the right one, there is nothing wrong with that! Here are some helpful hints that I learned during my dx process... make a list of every symptom you have that is not normal, make a note of when it started and anything makes it better or worse. Pay close attention to your joint pain, the exact location and type of pain and also any and all lab results you have over the past couple of years. It may also help if you don't wear makeup to your appt, this allows the doctor to see your skin. Your doctor should spend at least 30-60 minutes with you, asking questions, examining your skin, hair, joints, lymp nodes, etc.
I am sure you have all this information together but just in case and also if we have any new members that are in the process too.
I was a lot like you before I was dx I felt terrible every single day, there weren't many days that I felt good. Once my doc started me on Plaq I started feeling a little better, then as new meds were introduced (NSAIDS, Imuran, Flexerill, etc) I began feeling better and better. Now I have more good days that bad but it took a couple of years to get where I am at, however I still have joint pain and a stiff back every single day but it's nothing compared to how I once felt. I still flare from time to time too, I just have to make sure I continue to listen to my body and take good care of myself.
I hope some of rambling made sense and I pray you get some answers at your appt, please let us know how it went. Take care ~ Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~
DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)