New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Oct 2006
Total Posts : 221
   Posted 11/25/2007 10:06 PM (GMT -6)   
Just wondering if any of you suffer from severe bilateral leg pain?  I had this happen about a year ago, but it went away slowly over about two months and I havent thought much about it since.  Yesterday, I went to work...  some contractors were using the holiday to refinish the huge conference room table.  The fumes from the paint stripper were so strong that you couldnt breathe on the second floor (there is no way to open those windows.)  I was there thirty minutes and had to leave because I felt dizzy.
Fast forward two hours... I began to burn and ache all over including my upper arms and tops of my legs.  So badly I had to take some pain meds and try to sleep it off.  I woke up worse than before.  All night last night the pain in the tops of my thighs was just agony, my arms felt better, but I thought I would just die with the pain in my legs! This morning, the legs felt a bit better but were still very weak.  I went to the ER this morning because I also had an ovarian cyst burst on Thanskgiving Day and was worried that I may be having problems with internal bleeding or something.  The ER visit ultrasound showed no complications from the cyst... and the ER doc said he had never heard of bilateral leg pain with Lupus.
Right now its 10:00PM and my hips and leg muscles are aching just awful.  If this follows the pattern from last year, this will go on for about two months and let up a tiny bit each day. Walking gets difficult after a few minutes.  The mall is out of the question.
What in the world could this be?  Could the heavy fumes have triggered some type of immune system storm and this is how it manifested?  I am so confused.  I cant find anything like this on the web. :(

Mother of four, full time Systems Analyst
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
Meds:  Medrol injections; Plaquenil 400mg, Vicodin, Benadryl, Zyrtec

Post Edited (Victoria72) : 11/26/2007 8:21:31 AM (GMT-7)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 11/25/2007 10:18 PM (GMT -6)   
Hi Victoria,

So sorry you are having such a bad time of it.

Lupus can cause bi-lateral (both sides) ANYTHING! In fact, it is one clue that you have some chronic illness going on and not an injury.

Not sure about the fumes and lupus . . . but anything that stresses your body can cause a flare. The panic of the situation will make things worse too . . . because emotional stress can cause symptoms too.

When you go to the hospital, you are at the mercy of the attending physician. If he knows nothing about rheumatology, he may not pick up on your symptoms. But your situation sounds more like asphyxiation. Try looking that up . . . or look up "symptoms of toxic air"

I hope the others can help.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 11/25/2007 11:17 PM (GMT -6)   
I suspect the fumes have indeed triggered an immune system response, and that the response happens to be an attack on your legs. I have had several similar seemingly unrelated responses (like a foot totally swollen, red, inflamed & painful w/absolutely no physical cause) to both physical and emotional stresses since being dx with Lupus.

Checking your white blood cell counts (there are 4 different kinds of white blood cells) could confirm that the immune system is actively causing inflammation. Rather than wait 2 months for the pain to abate, my rheumy increases a med to help address the situation more quickly. In my case prednisone (usually 10 mg) is often temporarily increased by 2-5 mg. Other meds may be more appropriate for other people.

Depending on your doctors methods, your overall health, your regular meds, etc. you may be prescribed something for more immediate treatment. I would check w/ a rhuematologist.


Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Regular Member

Date Joined Oct 2006
Total Posts : 221
   Posted 11/26/2007 6:03 AM (GMT -6)   

Thank you so much Rosie and Lynn.

Yes, my WBC was elevated to 12000 at the ER visit.  I will call my rheumy this morning.




Mother of four, full time Systems Analyst
Sjogrens, Crohns, suspected Lupus, Pancreatitis Dec. 2005
Meds:  Medrol injections; Plaquenil 400mg, Vicodin, Benadryl, Zyrtec

Regular Member

Date Joined Apr 2007
Total Posts : 104
   Posted 11/27/2007 7:03 AM (GMT -6)   
Hi Victoria - I too get severe leg pain.  There are times when I come up the stairs and have to rest my arms on the counter to wait for the pain to subside somewhat... this comes and goes and I can't seem to determine what sets this off....
Could the aching be arthritus?  At times I get very achy and cannot find a position that makes me feel comfortable...
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, August 20, 2018 9:39 PM (GMT -6)
There are a total of 2,994,985 posts in 328,179 threads.
View Active Threads

Who's Online
This forum has 161306 registered members. Please welcome our newest member, Benjiex.
308 Guest(s), 6 Registered Member(s) are currently online.  Details
PeterDisAbelard., JNF, 142, Saipan Paradise, RobLee, MacroMan