Posted 12/1/2007 11:00 AM (GMT -6)
She is helping me in respects of the actual "autoimmune symptoms", but my knees are very bad off.
I have very little cartlidge left in them and it has caused the bones to rub and grind together. When I bend my knees, you can actually hear the grinding sounds, in fact, my last doc got the heebie jeebies anytime he felt them bend. My rhuemy also seems to think that I might benefit more from a ortho doc for them. Guess I was a little vague about that. She also suggested I talk to them about my carpel tunnel...
Sometimes I get the feeling that she doesn't want to do anything above and beyond the steroids and plaquenil. She hasn't even tried any type of arthritis medication for me, plus she refuses to add the Lupus or Fibro diagnoses to my records...leaving me with just inflamitory arthritis on my charts and it is really not good for my Disability claim....all of my other health records show it, but not her, she claims to be doing it for insurance purposes, so they wont hold it against me or something like that. She is my first rhuemy, and I really just dont seem to click with her, but she is the only one I can see right now.
Every rhuemy around requires a PCP referral before adding you as a patient and my PCP INSISTS that she is the best around and I should only go to her, but then again, he is a do nothing for you kinda doc too. And to make it worse, her office is an hour from my house. I feel like I am stuck on the "let somebody else take care of it" train when it comes to my docs. Rhuemy says PCP should manage pain, PCP says its rheumys job...and I am not even trying to get narcotics here....they have both treated me this way from the start, which is how I wound up going to the doc that was writing me way too many pain meds.
All of this backs up my desires to find a ortho doc, just to see if he or she would have anything to offer me...I am searching for another PCP, who I hope may refer me to a closer rheumy. It is unfortunate that so many of the docs in my area are so uneducated when it comes to taking care of folks like us. I actually had to take an article from the LFA to my allergist to prove to him that I shouldn't be taking the live vaccine allergy shots he ordered for me....I asked him over and over if it was ok to have them with Lupus, he assured me they were, and within an hour of the first shot, I was curled up in a ball with symptoms like the flu...guess that is why everyone says to educate yourself well on your disease.
OK...this is getting long,and I am sorry for that, just needed to vent I guess...by the way, does anyone have experience with Provigil?
Diagnosed w/ SLE March 2005, Fibromyalgia 2005, RA 2005, Degenerative Cartlidge Disease 2006
Current Meds: Methylprednisolone 4mg/ Plaquenil 200mg/ Simivstatin