I stumbled across this site while doing yet another search. Every time I plug in my son's current symptoms, I end up looking at pages of hits mentioning lupus.
Our background: birth to 4.5 years: severe multiple food allergies, gastro issues, significantly low IgG (175- 300), one mild ear infection, one serious illness requiring hospitalization (believed by the admitting doctor and attending staff to be parvovirus due to exposure and appropriate incubation time, but he doesn't have the antibodies), mild asthma, one episode with the flu--nothing else. We were told he *should* be sick all the time. He wasn't. He also nursed past four years old. Could be why he didn't get sick.
Eight months ago, at 4.75 years, he started having joint pain. It's rarely isolated in a single limb; it includes arms, legs, wrists or, rarely, ankles, or any combination thereof. The degree of pain and the length of the episodes vary. The longest he's gone with no pain is almost two weeks, but usually it occurs a couple times a week.
In the last seven months, he's been sick at least 9 times, usually a day or two after we've gotten together with a homeschool group. It's usually follows a similar pattern: headache, sore throat, pain in his arms and legs (in September, though, it was his hands. They hurt enough to lead to frequent tears.), low grade fever (100-100.7) for three days and a spike on the fourth day. His most recent illness, two following another virus, lasted only about three days, but his temp was higher. For several days after he felt better, he still had a fever in the evening. This past Saturday, he was up most of the night crying because the pain in the joint on his left arm was so bad.
Our ped. moved a little further away (it was already a 40 minute drive to her office--we just really liked her) so we've been trying to find someone closer but we're on our second ped, and I'm starting to feel like an over-rective mom, except that I do have two older children and therefore some perspective of "normal". One ped tried to dismiss the pain as growing pains. We've seen an immunologist at Children's in DC who isn't overly concerned because his IgG was 443 in August and 500 in September; we're supposed to do a tetanus vax, but I won't do it when he's sick and we had several other tests done in October and needed to get through those prior to the vax.
They've tested for sickle cell (negative) and they looked at his thyroid (normal). The ped. said they did a blood test for juvenile arthritis and it was negative, but I've recently read in every source I could find about juvenile arthritis that there is no reliable test for juvenile arthritis. It's dxed by exclusion, and should really only be done by a rheumotologist. So I'm thinking the ped was off somewhere...
His ANA is negative, but I wonder if an immuno-comprised child who doesn't produce other antobodies would necessarily produce those. I don't know. I'm just running out of places to look.
We're in the process of transferring all his records back to the original ped because, even though she's further away, she's good and she knows him and she won't dismiss my concerns.
Oh, lastly, he has horrible eczema when he is exposed to certain allergens. So, we notice changes in his skin. There have been several times lately that he has had a slightly raised reddish rash on both cheeks, across his nose and sometimes on his chin. It's not his normal eczema.
Thank you so much reading this if you got this far and for any insights you might have!