Hi Bab's, hipppi, ginny, kris, 4mylife, lupus fighter, thank you sooooooo much fo responding. I had to go out in the rqin today and I am really taking it easy tonight. I really didn't have a choice in the matter. When I got sick it was the end of the month so of course my bills all HAD to be paid now or risk paying late fees. Some things I was able to do by computer but other things I just had to get out and do them. Plus I left my cell phone charger at the hospital sao I had to go get that. Fortunately I say I did alot but the truth is I sat in the van and my brother did most of the running in and out of places for me. I had scripts to pick up and insurance payment to drop off. I had a fridge full of food that went bad and my bro got it all together and out to the road for me. I leaned into the grocery cart to move around and pick up some easy cooking stuff by the time we got back here I tried to carry one lousey little bag of groceries in the house and had to set it down so I could use my arms to pull myself up the steps to the house. I'm measuring my energy level by tsb.spoonfuls rightnow.
Right now am starting over on my plaquenil because I was on so much meds they weren't giving it to me almost the whole time I was in hospital. Don't know if that was on purpose or in error but I had to stat over again. Hopfully it doesn't take another 6 months to stat working like before.
I guess I should give someone my # so at least I have a contact if this happens again. There were a few times I could have used an encoraging word. but I knew yu were out there and I really wasn't alone.
Ginny, thanks for the heads up. right now my hair is realy nasty. Between laying inbed and sweating and stuff I have knots all over my hair. There is no way i have the energy to shower and try to comb it out yet. Maybe in a couple of days. As for the predisone I was on I think 160 in hospital but she dropped it to 30 mil. the day before I came home. So Now she has me one 30mil. taper for 3 days and than 20ml. taper for 5 days and 10mil. for what seems to be about a 2 months supply. There was a totaly of 70, 10 mg. pills so it's a little confusing.
If anyone would like to email me please feel free. I would really like that. I think it's gonnna be awhile before I can really get back in the swing of things here.My PCP was really pushing me to get into to the rheumy again but I just can't take that trip right now. Maybe the first of the year.
Even if I don't post I will still try to get by here and read what everyone is up to.
you all be good for goodness sakes cause santa claus is coming to town!
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF, Cancer survivor. Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
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