Hi Bab's, hipppi, ginny, kris, 4mylife, lupus fighter, thank you sooooooo much fo responding. I had to go out in the rqin today and I am really taking it easy tonight. I really didn't have a choice in the matter. When I got sick it was the end of the month so of course my bills all HAD to be paid now or risk paying late fees. Some things I was able to do by computer but other things I just had to get out and do them. Plus I left my cell phone charger at the hospital sao I had to go get that. Fortunately I say I did alot but the truth is I sat in the van and my brother did most of the running in and out of places for me. I had scripts to pick up and insurance payment to drop off. I had a fridge full of food that went bad and my bro got it all together and out to the road for me. I leaned into the grocery cart to move around and pick up some easy cooking stuff by the time we got back here I tried to carry one lousey little bag of groceries in the house and had to set it down so I could use my arms to pull myself up the steps to the house. I'm measuring my energy level by tsb.spoonfuls rightnow.
Right now am starting over on my plaquenil because I was on so much meds they weren't giving it to me almost the whole time I was in hospital. Don't know if that was on purpose or in error but I had to stat over again. Hopfully it doesn't take another 6 months to stat working like before.
I guess I should give someone my # so at least I have a contact if this happens again. There were a few times I could have used an encoraging word. but I knew yu were out there and I really wasn't alone.
Ginny, thanks for the heads up. right now my hair is realy nasty. Between laying inbed and sweating and stuff I have knots all over my hair. There is no way i have the energy to shower and try to comb it out yet. Maybe in a couple of days. As for the predisone I was on I think 160 in hospital but she dropped it to 30 mil. the day before I came home. So Now she has me one 30mil. taper for 3 days and than 20ml. taper for 5 days and 10mil. for what seems to be about a 2 months supply. There was a totaly of 70, 10 mg. pills so it's a little confusing.
If anyone would like to email me please feel free. I would really like that. I think it's gonnna be awhile before I can really get back in the swing of things here.My PCP was really pushing me to get into to the rheumy again but I just can't take that trip right now. Maybe the first of the year.
Even if I don't post I will still try to get by here and read what everyone is up to.
you all be good for goodness sakes cause santa claus is coming to town!