Posted 12/9/2007 5:00 PM (GMT -6)
Hi Lupus Fighter,
You know. It took me a few years to see figure out what was causing my pain. Was it the lupus, or the fibro? Then my rheumy told me to try something and see what happened. This was during a time when I was in a mild lupus and mild fibro flare at the same time. So, she had me increase my prednisone, and if I felt better and the pain went away, then it was a lupus flare and pain that I was experiencing. If by increasing the prednisone, I got worse with the pain and how I felt, then it was the fibro that was to blame. It doesn't take long to see a difference either way. Just a few days. For the headache pain, I only take extra strength Tylenol, and a good sleep! Putting some light pressure on the temples works too.
For me, the main source of my pain is the fibro. So being on anything more than 6 or 7mg of prednisone will make me pretty sore. Unfortunately, my lupus wants me to be at 8.5mg right now. So I'm probaby suffering from a bit of both conditions. That might be your case too. A bit of both.
What dose of prednisone did you taper down from? How long did it take for you to reach the current 15mg? If you go too fast on the taper, that can cause problems with additional pain as well. The most you should do is 2.5mg every two weeks. Just in case you didn't know! Slower is better with prednisone. Less chance of a rebound flare.
Oh, 4mylife had a great suggestion with the Epson salts. Those are great! Whatever you do, don't try to push yourself. You'll be taking one step forward and two steps back if you do that. Having lupus means changing your lifestyle, and how you do everything. It's not easy and quick to learn though. We've all had issues changing our lives and trying to get others to understand what it's like. The only people who understand are those of us with lupus and fibro. That is why this forum is so important and wonderful! It might be an interesting idea to have your friends and family take a peek at the posts on here, and learn from us all.
Take care and keep fighting!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus