Posted 12/10/2007 9:30 AM (GMT -7)
Well, it's more common now to still get a lupus diagnosis even with a negative ANA. The ANA can go from positive to negative relatively quickly, so it's not a clear cut marker to use as a diagnositic tool. You need have ALL of your antibodies checked. Did you have a lupus blood panel done? It's extensive. Lots of blood work and blood cultures. You'd know if you had one done!
Best thing to do is to take a picture of that rash you have on your cheeks and nose. Take pictures of all your skin rashes to show your doctor.
Also, take that sed rate result with a grain of salt. It's not a good indicator of what is going on either, unless the numbers are way over normal. Normal being 0-20.
Hemotologist might be looking at Sjogren's syndrome if he did a lymph node test. I think the dx of psoriatic arthritis fits. I have a friend with that, who has all the symptoms you do. So many of these autoimmune diseases mimick each other. It can be a nightmare figuring out exactly what you have.
But keep up with the doctors and specialists. It can take time, but you'll get there. Please keep in touch with us and let us know what is going on okay.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus