Posted 12/12/2007 11:50 PM (GMT -6)
Okay. We're getting somewhere here! She prescribed a VERY low dose of prednisone. Probably not even close to what you need in order to see if it makes a difference in how you feel.
A little anatomy lesson for ya! The adrenal glands are small, almond shaped glands that sit on top of your kidneys. These little glands produce many of our body's hormones. One in particular is cortisol. When you have an autoimmune disease like lupus, the adrenal glands don't produce enough cortisol to combat the inflammation that is going on in the body. So as a treatment, prednisone is prescribed to pick up the slack. Prednisone is a synthetic form of cortisol. The body naturally makes between 5 - 7mgs of cortisol. So for most of us, when we're initially diagnosed, we need 40mg or more to really knock the inflammation out and start feeling better. It also takes about 2 weeks for a high dose to kick in if you've never been on it before. So 2.5mg is not very much! Just my opinion here, but I don't think that is going to help you. Anyone else? Ideas, suggestions? Comments?
I saw your other thread asking for a lupus specialist. You're already seeing a rheumatologist, who is a lupus specialist. No one else can diagnose lupus. Only they can. So, you just need to see another one, or like Redrose said, see as many as you need to. I've been through 4, and Bill sees two at the same time! So, make sure you feel really comfortable with your rheumy, as this is the person who will be managing your lupus. Definitely get in touch with your local lupus foundation chapter. They can give you a list of rheumies to call.
Is this helping or making it worse for you???? I hope this is giving you some encouragement and a direction. I'm sure there will be many more people posting ideas and suggestions too.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus