I know it's hard being on those high doses of prednisone. I don't like the "moon face" either. What other medications are you taking right now? There are alternatives to prednisone, but honestly, pred is one of the very best ones to be on. Are you taking any immune suppressant drugs?
I would love to be off pred as well, but it has saved my life. I look at the pros of being on it and man, I would take the moon face, weight gain and emotional rollercoaster rides over a massive flare up that could kill me, LOL! Take it in stride, girl. You'll get through this and you'll be on your way to lower doses and that moon face will disappear! But you have to let the med do its job first. Then taper slowly, 2.5mg every two weeks. NO faster. You'll see that puffy face start to go away when you hit 10mg a day. Lupus isn't a get well quick kind of disease. It takes time. You deserve to be well. Let the meds do their thing, okay! It WILL get better, but it takes patience.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus