It's been a while since I've posted...I hope everyone is doing well. On top of everything else that is going on, the pericardial effusion that I have had for years is now starting to give me problems ( pain, shortness of breath ). My cardiologist is trying cellcept to decrease the volume of fluid and I was wondering if anyone could tell me anything about taking it? I am on my second day and take 500mg twice a day.
I have not had any side effects from it so far. I hope it works because if it doesn't, he wants to drain it, and the thought of that terrifies me.
I had to go to the emergency room sunday morning with a high fever....doc did blood work and urinalysis and decided it was a flare. Whoopee! So I was given a schedule to adjust my prednisone for these sudden fevers. Does anyone else do that? A hard chill followed by fever? It happens every so often and totally wipes me out.
Am now taking lasix to decrease swelling in legs, as if I wasn't spending enough time in the bathroom!
I have asked my rheumy and others exactly what a flare feels like and have never had a straight answer....is that because it is different for everyone? Mine seems to be fever and fatigue, but if it is, i have alot of them. It's weird, I've been diagnosed for 6 years and I'm STILL trying to learn what I can about being a lupie. I try to keep my spirits up, I know stress can hurt....but it can be frustrating because there are so many things I used to do that I can't anymore or just don't have the energy to anymore.
Sorry to run on and on....If anyone can help me out with info on cellcept and flares, I would appreciate it greatly.
Mixed Connective Tissue Disease, SLE, scleraderma, Polymyocitis, Hypo-thyroidism
Prednisone, Procardia, Synthroid, Reglan, Nexium, Vitamins and supplements.