Hi everyone. I could write a book about this past week, but I won't. We had about 5 days without power, but some people around us were without power longer and some still don't have any. We sill have a huge mess in our yard to clean up with lots of trees down.
My son ended up getting really sick and we took him to an urgent care center on the weekend and his white blood cell count was really elevated, so he was placed on strong antibiotics then a a day later, I got the flu. I know that I ended up getting completely worn down so it's no surprise that I got the flu.
Of course the flu made my lupus symptoms flare and I'm finding it hard to get the rest I need because things are so busy right now, but I'm trying because I don't want to increase my prednisone. It's just frustrating because I had really been doing pretty well before all of this happened and I had even managed to taper down to 7.5mg of prednisone.
I saw my rheumy yesterday and had a good appointment with him. He said that my mouth and eyes are so dry now that he'd like me to try evoxac (sp?) to see if it gives me some relief. He said it should help with saliva and that some people have told him that after a while it had also helped with tears too. I have my samples, but haven't tried them yet. I look to look things up about the med just to be awayre of possible side effects before I take it. He wanted to run some labs but when I told him I was getting a physical soon, he wrote out a script for the labs when I have my physical done.
So, that's my story. I'll slowly try to catch up with everyone here.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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