Dear Wacko Woman,
I am sorry I've been remiss in getting back to you so long. We have had another stunning piece of news, that is, as I suspected. My 12 year old daughter as I mentioned is being treated with Diflucan for her chronic Lyme that I passed to her in the gestation period, and breastmilk. Her older brother, 15, also tested positive for the Lyme and Bart. Need I say more. Aside from the neuropsychiotic behavior of my little girl, with anxiety waxing and waning during a very stressful time in her academic life (tons of homework and tests in 7th grade), our son is on Zithro and will soon be having a herx. His moods have been eratic, very unpredictable, and tough to get him to take probiotics like my daughter and I religiously have done over the last three years. He is bright, but has sensory integration issues, bright lights bother him, chilled all the time, shows confusion and forgetfulness and overall has lost weight over the last four years and won't go with our healthy meal plans. I force him to eat caesar salads, and stuggle to get him to eat fruits and vegetables or to take his Juice Plus supplements. He has classic gut dysbiosis, craves sugar and chips and junk. I am living proof that having Lyme in my body for 19 years from what we could gather (IgG/IgM) based on my symptoms, diet, exercise and supplements have kept me functional. I have lost all the inflammation around my gut from my thyroid, adrenal dsyfunction, and I am the same weight as when I married my husband some twenty years ago.
I worry about my kids and how we are going to beat this for they have seen how disciplined I have been since being diagnosed a year ago. No alcohol, no sodas, no junk, little treats, but rare, infrared detox, epsom salt baths, and supplements and pills daily. It's a battle of mind over matter, incredible determination and faith that have gotten me this far and I still battle the fatigue, nausea, and confusion in my brain.
I too take Jernigan's Neuro-Antitox formula as well and I don't expect my son will consider the full protocol, but I will pray for a miracle! I appreciated your words of encouragement for your 31 yr old son, and pray for my children.
I have read many of your posts off and on as I've herxed in the last six months and I admire your strength. When I consider how profound this disease has impacted my family's life, it's a wonder I can think clearly at all. The original LLMD who diagnosed me ran the NeuroImmunology Lab on my little girl (along with the usual Igenex/Fry labs) showed streptococcal M Proteins, both IgG and IgM. This explains her enlarged adenoid and pus on her tonsils, foul breath as well. She believes she needs 12 shots of LA Bacillin. one per week, over a period of 3 months to clear that infection. Her plan of treatment was to begin with this, followed by 1 tsp of Zithromax at night for 3 months, then followup with five months of Doxycycline. (I am on Doxy since March and Mycobutin). A friend whose high school age son went thru those shots said they are painful, require a Lidocaine patch, but his disposition improved after being treated. I really pray for wisdom because I want so desparately for my daughter especially to just find contentment in herself, peace and joy of who she is. She cries everyday, has terrrible anxiety, and as a family we don't invite many people over anymore because of this tension and emotional roller coaster. Her brother, also just diagnosed, has really harbored much anger and resentment for her temperament and learning issues. He has withdrawn from the family, runs himself ragged at school, has friends, but clearly lacks confidence and does not project himself well. We consider ourselves blessed to not have both of them on the Autistic spectrum, but she sees how good he is at everything, or so it seems and she stuggles.
All of us with families struck by Lyme should network and publish our stories of how pervasive this disease can impact one's behavior and brain. I will try to watch for your reply and again, sorry, I took so long to respond.
Take care! Kay of KC