Daughter may have recurring Lyme - help please

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LauraJB
New Member


Date Joined Oct 2008
Total Posts : 2
   Posted 10/3/2008 10:00 AM (GMT -7)   
Hi Everyone,

I am new to this forum. My daughter had Lyme 2 years ago, she was 7 at the time. She was treated for 3 weeks with antibiotics and slowly became herself again. For the past 2 weeks she has been extremely fatigued and just generally not feeling well all over. The doctor did a blood test and said 4 out of ten of something in her blood(sorry I don't know the medical terms) were elevated and that she probably has Lyme again. Does this seem reasonable to anyone? Can you go 2 years being healhy and then get it back again??

jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 10/3/2008 10:10 AM (GMT -7)   
Yes, he was talking about bands that are reactive for lyme. She needs to be treated for much longer than 3 weeks. Find a doctor who knows about chronic lyme and get her treated sooner than later. Ticker on here can make some recommendations
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.


LauraJB
New Member


Date Joined Oct 2008
Total Posts : 2
   Posted 10/3/2008 10:59 AM (GMT -7)   
THanks so much for your quick response. Have you heard of people going 2 years healthy and then getting sick again?

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/3/2008 12:39 PM (GMT -7)   
Yes. Lyme can follow a relapsing-remitting pattern.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 10/3/2008 1:00 PM (GMT -7)   
Tons of people relapse. Your daughter is very young, I wouldn't mess around with this.
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.


runningiri
Regular Member


Date Joined Jan 2008
Total Posts : 373
   Posted 10/3/2008 2:26 PM (GMT -7)   
LauraJB,

I was healthy for about 18 months and then completely relapsed!! This disease is very persistent, that's for sure.

-Jennifer

tickbattler
Regular Member


Date Joined Jul 2007
Total Posts : 327
   Posted 10/5/2008 6:22 PM (GMT -7)   
Laura,

My entire family has lyme, including my twin 4 year old boys and probably my 2 year old girl. My husband was the first to be diagnosed. He was treated for 3 weeks with abx one summer after a positive lyme test and his headaches went away. He was fine for almost a year but then the headaches came back along with numerous other symptoms. He is being treated again now and is improving after a year of abx. He will probably need another year of treatment. If he had been given 6 weeks of abx the first time, that probably would have cured it. 3 weeks is normally not long enough to kill the lyme, despite what many doctors say. The same thing happened to one of my sons.

You need to get your daughter to a LLMD as soon as possible! The sooner you get her treated, the shorter the treatment time should be. My sons are seeing Dr. J in CT, who is arguably the best pediatric LLMD in the country. I would strongly recommend him. We drive to see him from PA. E-mail me if you would like to get more info. belval@comcast.net.

Don't waste your time with mainstream doctors or infectious disease doctors, as almost all of them know nothing about treating lyme. There are many people that are well for a couple of years and then the symptoms return, so I don't doubt that your child has lyme.

tickbattler
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 12:16 PM (GMT -7)
There are a total of 2,904,042 posts in 318,715 threads.
View Active Threads


Who's Online
This forum has 158118 registered members. Please welcome our newest member, yoho.
349 Guest(s), 14 Registered Member(s) are currently online.  Details
Husband Johnny, kyleds8, Spring, ProtonT, yoho, Kaitlan, Kat1000, Laugh and live, NiceCupOfTea, Adagio, polkadotdress, AZ Guy, Szabo246, Village Crazy Lady