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Jeanne17
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/3/2008 8:37 PM (GMT -7)   
Hello Everyone.
 
My name is Kayla and I am going to be 19 this november. And in mid January, I will have had lyme for 5 years. Long and boring story Im sure alot of you will look at as deja vu lol
 
Been diagnosed with everything under the sun and attempted to be pried with many and all colorful, ineffective drugs. Thank goodness my body cannot handle the toxicity of most of the drugs, so I have gone the natural route pretty much the whole way(as nasty as some of the things I had to eat and drink were >.<)
 
Not actually diagnosed with Lyme disease exactly, but I know that is what it is. Didnt really treat anything until the end of the 3rd year and by that time, it was cronic.
 
Most common symptom is not being able to walk from time to time. I thought I had gotten that taken care of because I was doing so well for a period of 5 or 6 months and all of a sudden Im down again and today will mark week 2.
 
Had to drop out of college and quit my job and have been bedbound since then.
 
Just thought I would introduce myself. Some of you may know me though. lol
 
Love and Energies.
Kayla

ticker
Veteran Member


Date Joined Feb 2003
Total Posts : 9208
   Posted 10/4/2008 6:06 AM (GMT -7)   

Hi Kayla, welcome to the board!

I am sorry you are so sick and had to drop out of school.  I know this is frustrating.  Have you ever been tested for Lyme?  Is your family supportive?

Below is a Lyme symptom list.  You can have any combination of symptoms. 

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a knowledgeable doctor.  No test is completely reliable, and results can vary by lab.  Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma.  Many people who have Lyme are co-infected.  It may affect treatment choice and progress.  It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.  Have you been tested for these? 

If you would like a doctor recommendation, you can email me at ko_@bellsouth.net  

It is also important to learn as much as possible.  I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses at http://www.ilads.org/burrascano_0905.html  He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols.  He also lists diet, supplement, and exercise recommendations.  I also recommend the book "Everything You Need To Know about Lyme Disease Second Edition" by Karen Vanderhoof-Forschner and "The Lyme Disease Solution" by Kenneth B. Singleton MD. 

Hang in there okay?  Good help is available, and you are not alone. 

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