Went to a LLMD today, here is what she said...

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Regular Member

Date Joined Sep 2008
Total Posts : 123
   Posted 10/10/2008 8:15 PM (GMT -6)   
I am about to end my 4 weeks on Doxy (400mg) so she wants me to stay on it another month. She wants to make sure there is a cycle to see if I herx at all.  I am assuming if I do not herx at all it ends?
When I first started taking the Doxy I felt really crappy for the first 10 days. She said that was most likely a herx and that I should remain on Doxy for 6 weeks following that (day #10).
Next up will be 500mg Ceftin, add Biaxin 500mg for two weeks and then Metronidazole 500mg for 2 weeks.
After that I should follow Dr. Singleton's diet in his book. Then we would finish with Glutethione. 
I am going to see an infectious disease doc in a couple of weeks. I need another opinion.
I hate the idea of having to take all these drugs. I just feel uneasy about it.
Help! Any advice for me?? Does this plan sound like a good one?

Regular Member

Date Joined Sep 2008
Total Posts : 123
   Posted 10/11/2008 9:27 PM (GMT -6)   

Veteran Member

Date Joined May 2007
Total Posts : 517
   Posted 10/11/2008 10:36 PM (GMT -6)   
Hi baileygirl,

I am not a doctor, so I can not tell you if this plan is right or not. However it does not seem excessive to me. What are your current symptoms? have any of your previous symptoms decreased or ended? Have you any new symptoms? How is your body handling the ABX ? Did you tell your LLMD you were going to see an ID doc ? I think getting second opinions are a good thing, however don't be surprised if you get a different DX. I hope you find the answers you need and feel better soon!!

Veteran Member

Date Joined Nov 2005
Total Posts : 840
   Posted 10/12/2008 2:53 AM (GMT -6)   
How long have you been sick? How do you feel now?

That doesn't sound excessive to me. Many of us have taken a lot more medication for a lot longer. We are all different.

I know I have Lyme, Babs, and Bart but I have been told by 2 different IDs that I don't and if I did I would have gotten better on 4 weeks of meds despite being sick for 5 years. I am thankful to have a LLMD I trust because I don't think the IDs had a clue.

I wish we could be more helpful, knowing a little more about your situation would help. Read and try to get a good understanding of the disease but having a LLMD you trust is key.


Regular Member

Date Joined Sep 2008
Total Posts : 123
   Posted 10/12/2008 8:34 PM (GMT -6)   
I found out I have Lyme late July of this year.  My only symptom was a swollen knee (after lots of running that week).  My doc, a NP I saw, suspected Lyme right away. She had me tested. Soon after I had skin tingling... I felt like I had too much coffee too even though I did not. I tested positive on the WB through LabCorp. All the IgM's were positive and one IgG was positive. Once I started the drugs (100mg Doxy 2x a day) I was really tired and still feeling tingly.  about 7-10 days later I was feeling good. I was having some headaches and neck pain too which went away.   I stayed on the Doxy for 28days. My last week on them I was feeling crappy, bad headaches and I was bruising easily. I thought it was the Doxy but I am not sure.   I went off and about a week later I found a tick on me.  I went to the doc and she gave me one dose of Doxy (200mg). about 5 days later I was feeling like crap.  I was SO tired. I was forgetful and feeling panic and major anxiety.  I also had the too much coffee feeling again.  I went back to my NP and she gave me 30 days of Doxy. This time 200mg/2x a day.  Once again it took about 10 days or so for me to start feeling better again.
Both times I have responded well to the oral antibiotics.  Right now I feel great. I am actually going to start exercising tomorrow.
My plan is to continue on the Doxy, see the Infectious Disease doc (just to see what they say) and go from there.
I am handling the ABX fine.  Both times when I was sick, I had a racing heart. My pulse was normal but I felt like my heart was just pounding.  It went away. Every now and then I feel it and my pulse is higher but I think that is more anxiety. Once I start deep breathing and force myself to relax it goes away.

Regular Member

Date Joined Feb 2007
Total Posts : 323
   Posted 10/13/2008 2:06 PM (GMT -6)   
Unless the infectious disease doctor understands chronic lyme, they may not be the best doctor to consult with. My SIL listened to her inf dis dr instead of her LLMD and stopped all her meds. Now she is sick in bed totally disabled and still insists she doesn't have lyme because of what her infectious disease dr told her.

You have been ill only a relativly short time. I would recommend listening to a lyme literate doctor to make sure you get rid of it now instead of being ill for years and years like many of us here.

Take care,

Regular Member

Date Joined Sep 2008
Total Posts : 123
   Posted 10/14/2008 2:39 PM (GMT -6)   
I decided to not see the Infectious Disease doc. I went to my NP today and she is running all the bloodwork (6 tubes worth - yikes!). She is also going to keep me on Doxy for 4 more weeks. She wanted to bump me down to 100mg 2x a day and then changed her mind. I have all the meds. I would just assume taking 400mg 2x per day would be best.

Veteran Member

Date Joined Jan 2008
Total Posts : 692
   Posted 10/15/2008 12:52 PM (GMT -6)   
Most ID are worthless. They go with the IDSA guidelines. I went to one, and he said "I know you are sick (after looking at my SPECT scan and my western blot) but I don't know if you have lyme."

Kansas City has one ID MD who is lyme literate and is well thought of. But, he has a year waiting list!
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.

Regular Member

Date Joined Jul 2008
Total Posts : 78
   Posted 10/18/2008 1:58 AM (GMT -6)   
Take as much as you need to in order to avoid relapse or the disease popping up in the future and being chronic.

Regular Member

Date Joined Aug 2008
Total Posts : 81
   Posted 10/18/2008 11:35 AM (GMT -6)   
Why the glutathione at the end?   I thought the idea of glutathione was to ease the herxes, but maybe I am incorrect?    Hiker53


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