finding this diet hard...

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Regular Member

Date Joined Sep 2008
Total Posts : 285
   Posted 10/11/2008 7:50 PM (GMT -6)   
does anyone ever stray from the no sugar/no flour thing a little ? and what happens?

Veteran Member

Date Joined Aug 2007
Total Posts : 4415
   Posted 10/12/2008 2:12 AM (GMT -6)   
Sugar = mood swings for me. Wheat flour makes me sick (diarrhea, abdominal pain, menstrual cramps & migraines) because I'm gluten intolerant. Other gluten free flours are generally hard for me to digest and/or I'm allergic to them (allergy to corn, rice, and bean flours; indigestion/gas from potato, tapioca, millet & quinoa flours). So I don't stray much.
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).

Veteran Member

Date Joined Nov 2006
Total Posts : 667
   Posted 10/12/2008 6:56 AM (GMT -6)   
Only good things happen, I am doing this for over 2 years and you I was on 3 antibiotics at times and not taking any probiotics , and geneally felt much better, at this point I do have one slice of whole wheat bread in the morning, it is very difficult in the begining but gets easier as your body gets used to it

Veteran Member

Date Joined Nov 2005
Total Posts : 840
   Posted 10/12/2008 1:19 PM (GMT -6)   
If I eat out and order something with a sauce or dressing that I am unsure of I can tell really quickly if it did have flour or sugar. My arms start itching like crazy. Then I retain water and feel puffy/bloated.

It is so difficult to eat out. It isn't hard to avoid the obvious bad stuff but there isn't much at a typical restaurant without some sugar or flour.

I rarely eat out.


Regular Member

Date Joined Jun 2008
Total Posts : 83
   Posted 10/13/2008 2:59 AM (GMT -6)   
I have a question for those with Bartonella and undergoing antibiotic treatment and those who are experiencing bladder issues.

I was already trying to cut down on spicy food and tomatoes and sugar while on treatment for my bladder. But, this Bartonella thing has also got me even more confused. Is wheat stuff okay to take? I'm finding it so difficult to eat bread and stuff? So, I just dont' eat bread and I see that rice = carbohydrates = sugar so I'm now having brown rice, is that okay?

What else are bad for me? Do I have to go all organic or something? Organic sugar is still a no-no? Like organic evaporated cane sugar and wheat crackers. Are Vermicelli noodles okay? I read in another post milk is not good either. . . darn, I really don't know what to eat. I've now stopped talking things with flour in them.
Interstital Cystisis or Chronic Recurrent UTIs - No treatment currently, but hoping while treating the Bartonella, the body will be strong enough to kill the UTIs on it's own.
Bartonella - Biaxin
Nystatin with antibiotic
Garlic pills
Vitamin E 400IU
Probiotics, two hours after antibiotics

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