georgiagirl-Hey I am glad to hear you are having some success with the Rocephin. I definately want to go back on..I never would have stopped if it hadn't been for the gallbladder problem.
I was on mino/zithro but the zithro is making me so sick so now I am just on mino/plaquenil and malarone. My doctor here in NH wants me back on IV but I have to wait until I see Dr. H next month. It is the ONLY thing that helped me and I think that maybe if I have another 6 months I won't relapse.
I honestly think my immune system was not strong enough to keep the bugs away because I will tell you I felt really good while on IV. So I am willing to give it another go no matter what.
Please keep me posted on how you are doing and I will let you know what happens with my appt. on the 14th. I am sorry you have to go on SSDI and I wish you luck getting all the paper work done and being approved for benefits. My sister has MS and is going through the same process.
Dr. H did say that some of his patients do relapse after coming off IV but that everyone is different and he has had patients not even notice any progress for 9 or more months. I noticed within 6 weeks. I believe he keeps patients on as long as they are feeling better and progressing. All I can say is I want my Rocephin!