Hi, my LLMD was my last resort after seeing 4 neurologist and a rheumatologist who couldn't find what was wrong. I never thought that my problems were anything related to my lymes since I was post lymes 5 years.
My symptoms: At night I would have seizure like activity with at first my right foot "posturing" (pulling in very tight with my toes pointed and my ankle pulled inward). Then my wrist started doing the same thing. I would "posture" so hard, I sprain my wrist in my sleep while wearing a carpal tunnel support!!!)
MRI with and without contrast was all normal and during the day i had no other seizure like activity. If you can imagine, having my feet in that position all night I have a very difficult time walking during the day.
I truly felt in my heart that my problems were not related to lymes. I had been trying to get into Mayo clinic in MN to see the doc's up there. Mayo put my name on the waiting list but as they waited my problems were getting worse. I made an apt to see my LLMD to either bring light to these problems or write a letter to get me to mayo quicker.
He looked at all my previous tests results I had brought with me, listened to my problems and then said two things:
I could have a co-infection (I had not seen him in 4 years) and that my seizure like activity could be related to chronic anemia. Now my labs have always been "normal" but at the very edge of normal. He said that sometimes neurological problems can manifest from low iron. He said my red blood cells were very small.
Which when the tests came back to show the babesia then it all made sense. Since babesia ruptures the red bl cells, that would acct for the problem.
I just started Mepro with zithro 4 days ago. I'm starting IV iron this week to help with my anemia. I'm not able to take iron orally, i have a bad reaction to the delivery.
That's my story and I'm sticking to it! LOL!
love to hear from you too