Lyme and Central Nervous System

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*Bella*
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Date Joined Jan 2007
Total Posts : 1254
   Posted 10/20/2008 10:26 PM (GMT -7)   
I went for my first acupuncture treatment last week. The acupuncturist said that she wants to "rebalance my central nervous system". She said that it is imbalanced due to Lyme and seems to think a lot of my symptoms are coming from that.

So, my question is, do you think that it would make sense that the vibrations (in throat, chest, legs, etc.) could be coming from an imbalanced CNS?

I'm confused as to what symptoms would or would not relate to the CNS and want to make sure my acupuncturist knows what she is talking about before I spend a small fortune on her.

Thanks!

jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 10/21/2008 5:48 AM (GMT -7)   
Bella:
My understanding is that if your CNS is involved, that means that spirochetes have infected your brain, causing encephelitis (sp?) From all I have read, the only way you are going to get that to go away is with something that crosses the blood brain barrier well.
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.


*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 10/21/2008 1:49 PM (GMT -7)   
Hi Jginkc,

Would encephalitis show on an MRI or CT Scan? I've had both recently and nothing showed up.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/21/2008 4:00 PM (GMT -7)   
Not necessarily. From what I understand, a SPECT scan is more helpful for Lyme encephalitis.
-Razzle
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).


jginkc
Veteran Member


Date Joined Jan 2008
Total Posts : 692
   Posted 10/22/2008 3:11 PM (GMT -7)   
Yes, MRI often do not pick up on abnormalities. I had an MRI done in March 2007 that was normal. In May 2007 I had my first SPECT scan showed moderate vasculitis throughout my brain. Thankfully it was much better a year later.
Month 18 of Lyme and Bartonella
On Zhang, doing much better, but not there yet!

90% functional, feel about 85% of my former self.


*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 10/22/2008 4:04 PM (GMT -7)   
I had no idea that the MRI wouldn't show anything. I got mine primarily to rule out causes for my vertigo, but both my MRI and CT scan were normal except for sinus polyps.

Hopefully when I see my new LLMD, I can get a script for a SPECT scan.

marylandgirl
Regular Member


Date Joined Oct 2008
Total Posts : 26
   Posted 10/26/2008 1:43 PM (GMT -7)   

Bella,

Did you ever have an ENG test for your vertigo?  I just had one and am waiting to hear the results.  I had a clear MRI and my next step is Lyme testing.  Just wondering if you had an ENG for vertigo and what the results were.  I'm a little anxious to rule some things out!


Sulma
Regular Member


Date Joined Apr 2008
Total Posts : 366
   Posted 10/26/2008 2:07 PM (GMT -7)   
I've never understood why no physician wants to order SPECT's. The behave as if MRI and CT are the only two brain imaging technologies.

*Bella*
Veteran Member


Date Joined Jan 2007
Total Posts : 1254
   Posted 10/26/2008 4:02 PM (GMT -7)   
Hi Marylandgirl,

I didn't have an ENG, but I saw an ENT who told me that my vertigo wasn't coming from my ears. I believe it is from Lyme.
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