Hand/finger pain: Achy joints - which joints ache varies from time to time. Sometimes I also get shooting pains from elbow down arm and spreads across back of hand to knuckles, and is often associated with an inability to continue holding on to something I've got in my hand. Both are worse from gripping things, writing, using a knife to chop veggies, etc. Often worse in the morning when I first get up, and also worse in the evening or after a lot of hand-intensive activities.
Leg pain: One leg or the other, sometimes both, sometimes one leg will hurt one day & the other leg will hurt the next day. Does not occur every day - seems somewhat random, although having my menstrual cycle seems to bring it on more easily. Deep ache, moving from place to place, shooting, throbbing, feels like muscles in legs being shredded one muscle fiber at a time; pains can be in joints (knees, ankles, hips) and / or extending into muscles/other parts of legs. Sometimes this pain extends down into my feet. Once the pain starts, it is worse from bending my knees, standing, movement, & better from heat. Regular stretching and toning exercises help reduce severity and frequency; any change in activity level can trigger the pains. This pain is the first symptom I ever had (age 4; started soon after being bitten by a Red Fire Ant - this is believed to be the source of my Lyme but there is no proof...), and no treatment has ever made it disappear for good (longest "break" from this pain was 4 months).
Feet pain: The joint corresponding to the base of the large toe is very tender to touch (feels bruised, achy) ~ this is worse on my right foot. I also have bunions, so I don't know how much of this is Lyme vs. the bunions hurting. Also, if I stand for too long, the bones in my feet start to ache quite severely, as if I've been standing barefoot on a cement floor (better with improved arch support & more stable shoes, but it still happens). The bottoms of my feet also hurt every day when I first wake up, but this goes away after I get out of bed.
Back pain: Deep ache in lower back (muscles and joints) when sitting or lying down in one spot too long.
Abdominal pain: Intermittant "twinges" & can be "punched in the stomach" feeling pain, sharp & darting pain, stabbing pain, and/or crampy pain.
Headaches: Achy, pressing/boring, or throbbing pain. Often accompanied by neck muscle soreness and neck vertebrae joint aches. Sometimes the headache pain is in my forehead, sometimes in the back of my head just above my neck, sometimes behind one or both eyes, sometimes it moves around my head, sometimes feels like I have a headband on (encircling my forehead around above the ears and to the back of my head), sometimes the pain is only on one side or the other. Symptoms that come along with most all of my headaches include nausea, eyes more sensitive to light, fatigue, & difficulty concentrating. Migraine medication does not work for these headaches (meds used to help before I stopped eating gluten grains).
Nettles completely relieved the hand & foot pains and significantly reduced the severity of the leg & back pains when I was able to take it (am unable to eat/swallow anything now, so looking for other ways to get the nettles).
Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.
Meds: Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).