Really Need Some Help (Opinions) about VEINS

Steroids may only make things worse. Have you seen a doctor about the black veins, or talked with an LLMD about it?

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-Razzle

Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.

Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).

I read in a blog about Dr. S.'s Bartonella book and the person who wrote the blog said nothing seems to actually be effective for Bart/BLO except Clove Oil. Perhaps getting some to put on your legs/feet would help? May need to take it internally, but make sure you find a high quality theraputic grade essential oil of clove (it is NOT 100% pure if alcohol or other ingredients are listed on the label).

Also, how much Vitamin C do you take?

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-Razzle

Chronic Lyme Disease, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, Anemia, Lymphopenia, intermittant Pancytopenia, chronic malabsorption/malnutrition, etc.; G-J Tube; Currently TPN-dependent.

Meds:  Zofran, Pulmicort, Vitamin B12 Shots, Heparin (to flush PICC line).

Snake,

I am so sorry to hear about how bad your legs are. What a cross to bear. I know it is hard not to let your mind wonder, but try not to think/worry about ending up in a wheelchair. That will most likely just cause you more anguish and anxiety. I completely empathize with your situation as I first became ill when I was 25. One very positive thing is that you have youth on your side and you had said that you were strong and healthy before this illness.
Anyway, have you considered seeing a doctor that specializes in vascular disease? Isn't there a branch of the mayo clinic in Arizona somewhere. I thought there was one in Scottsdale or nearby. What does your lyme doc (Dr. F, right?) have to say about your situation? In light of the severity in which you describe, I am surprised that he has not referred you to some other expert or perhaps been more proactive with treatment. The constant burning does sound horrible and I hate that you are having to deal with that. Are you still doing the Zhang protocol? What about the juicing and systemic enzyme therapy that you had posted about in the past? I sure hope things start improving for you. I will pray that some helpful knowledge comes your way soon.
Hang in there and keep us all posted.

-Runningirl

Thanks for all the replies...gratefully appreciated.  I tested negative for Lyme, #41 only.  Bartonella seems to be the culprit.  I have an appointment on Monday and will let everyone know. Have a great weekend!