I was diagnosed with Lyme late July 2008 - Only symptom was a swollen knee - while waiting for WB results I developed tingling all over my body. I was treated with 100mg Doxy 2x a day for 28 days. Felt better. Never knew I had a tick bite.
In Sept. I found a tick on me. I went to the doc - she gave me one 200mg dose of Doxy. Five days later started feeling bad again - like an electric current was running through me. I was tired, forgetful and extrememly anxious. Went back to the doc and got 200mg Doxy 2x a day for 30 days. In that time I saw a LLMD. She is not primarily a LLMD and I was actually warned by several people... I still went b/c I wanted to formulate my own opinion. She told me lots of things I read online. She wanted me to stay on Doxy for 6 -8 more weeks. I am now on week 7 of Doxy 400mg 2x day. I feel great. I have had some skin crawling but I am not sure what that is about. I have been exercising. My skin looked horrible even after all the Doxy and that has cleared up. My libido has returned - Yay!
I want to stop the antibiotics (after the full 8 weeks). I can't stand taking them. I know they wipe out everything good. I know they work too... I feel fine on them. No real stomach issues. The sun sensitivity thing SUCKS but I am a saint about suncreen. I take supplements (Multi, Vit C, Omega 3's, Probiotic) daily.
I am due to go back to the LLMD on November 19th. I want to go to see what she has to say. I had another WB done and 1 band was positive. Previously I had all 3 positive. At this point 2 are on the IgG are present - she wants to test me again in 2 months. All my blood work came back normal except for the EBV - the IgG's were high. I want that tested again as well since the numbers should go down.
I have not been tested through Igenex. I got the test kit but WOW - expensive! I can't afford that right now. Does insurance cover any - even out of service? Just curious.
Just looking for advice.
Thanks for reading if you made it this far.