what to expect?

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Regular Member

Date Joined Sep 2008
Total Posts : 285
   Posted 11/6/2008 11:32 PM (GMT -6)   
i found out today i have bartonella- along w/the lyme and babesia i know i've had... i've been on doxy and plaquenil--now rifampin is added to the mix.. my question is can i expect to herx bad on this and when does it usually happen? i was surprised to learn i had bartonella.. now i see that alot of symptoms overlap but i havent really had any gastro issues--when this all started i had urinary frequency( diagnosed as UTI)

Regular Member

Date Joined Jul 2007
Total Posts : 267
   Posted 11/9/2008 8:38 PM (GMT -6)   
I have bart and lyme.  The herx was bearable.  My stomach (gastro) issues have been greatly reduced.  My stomach is no longer bloated, the gas is gone, a few pounds remain to get rid off, but overall I am feeling better.  Now for the herx,  I herx at the beginning of each month.  Actually, I just figured this out.  I break out in a rash on my neck, knees ache more, and get fatigued.  Now to explain fatigued: I spend the most of the day on the coach or in bed.  That is my story, which may not be your story.  The disease affects everyone so differently. 
I think what bothered me the most was how my stomach felt and how distended my abdomen had become.  I can deal with the knee pain, not the gastro issues.  I have experieced some tingling along the head, neck, and limbs........it feels like pins and needles after a part of you had "fallen asleep."
I work full time, am able to go out with friends, etc.  I feel so lucky that I am not more sick than I am.  I may not be operating at 100% but neither am I operating at a level that incapitates me. 
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