Co infections-need help-scared

king1234

Regular Member

Joined : Nov 2006

Posts : 491

Posted 11/6/2008 10:11 PM (GMT -7)

Hi guys, many of you know my story but I have not been dx yet. I only tested pos on band 34 and ind on 31 and 41 IGM with Igenex.

Now I am being tested for co infections. If one has lyme do they normally have co infections? Do co infections always show up in blood?

I am worried they will come back neg and I wont get a dx. If I have lyme, I want treatment asap but how does one KNOW if its not showing a definitive in the blood? I am seeing an LLMD in SF...

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33 yr old female

GERD dx March 2007

Migraines with Aura

IBS

Currently no dx for: migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. New as of Aug-muscle twitching throughout my body.

New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .

TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR

Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

bablymers

Veteran Member

Joined : Oct 2006

Posts : 1458

Posted 11/6/2008 10:48 PM (GMT -7)

Hi King! I hope you are able to get the answers you need from a good llmd soon. I am sorry you are suffering. When an insect/vector bites a human, they often have a "soup mix" of bacteria etc. in their bodies that they can pass on to the person. Co-infections are very common if a person has lyme. Also, lyme weakens the body, leaving it more vulnerable to other opportunistic infections. Co-infections do not always show up in the blood and no test is perfect. A good lyme literate doctor will make a clinical diagnosis based on symptoms etc. and use the tests as just one more piece of the puzzle, not the Only piece. If you are not happy with the doctor you are with, then ask around and go to another one until you get what you need. I hope your successful diagnosis and treatment begin soon! Best wishes. bablymers mom

Cheezhead

Veteran Member

Joined : May 2007

Posts : 517

Posted 11/6/2008 10:50 PM (GMT -7)

Hi king1234,

Many of times people have coinfections; very common. Lyme disease is a clinical DX, the blood work is not always a sure thing. A good LLMD will take your medical history, symptoms, & possible exposure into account and make a clinical DX. Are you currently being treated with ABX or any alternatives?

I questioned my Lyme DX for years. I was always looking for a strong positive blood workup to put my mind at ease also. It wasn't until I started to feel better and lost some symptoms that I finally believed in my DX. I have been fighting this since 2005; and still have a ways to go. I have or had every symptom you have and more. Before My Lyme DX, I was DX'ed with Crohn's, IBS, possible MS, TMJ, sinus infection, ulcers, ect. The Lyme DX is the only one that has made sense. Hope you find the answers you need!!

king1234

Regular Member

Joined : Nov 2006

Posts : 491

Posted 11/6/2008 10:58 PM (GMT -7)

Thanks so much! I have not been given any meds yet as I have not been dx. My LLMD decided to run a ton of other tests on my first visit, which was 1.5 months ago, I go back to see her in 2 wks. I hope she gives me some antibotics ALL other tests of mine have been clear--every other dr is puzzled as to what could be wrong. My symptoms do not match up to anything-full body non stop twitching, stabbing pains that hit for a min to hours and go to another part, nerve pain, muscle cramps (new), EXTREME joint cracks, joint popping out of socket, eye pain....

My wide range of issues is what is stumpind drs because my tests come back okay. I figured it would be lupus (or some AI), MS, etc..but nothing yet.

I dont want to get too sick from this...I am scared

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33 yr old female

GERD dx March 2007

Migraines with Aura

IBS

New as of Oct- DX with mild to moderate c spine stenosis and compression on spinal cord .

TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH (seems to flucuate alot),T3 -Too many to list -all CLEAR

Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

bablymers

Veteran Member

Joined : Oct 2006

Posts : 1458

Posted 11/6/2008 11:30 PM (GMT -7)

Dear King, We are all scared of this challenge. Try to use all the positive techniques you know of to encourage yourself to fight this with all your might! Try to keep a positive mind set, like a mighty warrior, when defeat is not an option. Knowledge is power, so learn all you can. This forum is a wonderful asset to the lyme community. Use it all you want to for help and support. Your symptoms sound like lyme, and the fact that so many tests and doctors can't figure it out, makes it Really sound like lyme! I know of a few doctors in the San Francisco bay area. I am curious who you have chosen. If you want to share that info or find out who else there is to choose from, just email me. Best wishes to you. bablymers mom

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